Berg Karianne, Askim Torunn, Balandin Susan, Armstrong Elizabeth, Rise Marit By
a Department of Neuroscience , NTNU, Norwegian University of Science and Technology , Trondheim , Norway.
b Department of Physiotherapy, Faculty of Health and Social Science , NTNU, Norwegian University of Science and Technology , Trondheim , Norway.
Disabil Rehabil. 2017 Jun;39(11):1122-1130. doi: 10.1080/09638288.2016.1185167. Epub 2016 Jun 13.
The body of research into client participation in aphasia rehabilitation is increasing, but the evidence on how it is implemented into clinical practice is still scarce. Particularly, the importance of including the "insider's perspective" has been demanded. The aim of this study was to explore how people with aphasia experienced client participation during the process of goal setting and clinical decision making in language rehabilitation.
Fifteen people with stroke-induced aphasia participated in semi-structured in-depth interviews. A qualitative analysis using Systematic Text Condensation was undertaken.
Analysis revealed four main themes: (1) pleased with services, (2) vagueness in language rehabilitation, (3) personal goals exist, and (4) desired level of participation.
Even though people with stroke-induced aphasia overall are pleased with the language rehabilitation, there is a need for greater emphasis on making the framework of language rehabilitation less vague. Therapists should also spend more time on collaboration with people with stroke-induced aphasia and use available methods to support communication and collaboration. The findings underscore the need for further exploration of the potential outcomes of implementing client participation in goal setting and clinical decision making for persons with stroke-induced aphasia. Implications for rehabilitation All persons with stroke induced aphasia should be asked about their goals for rehabilitation not only once, but during the whole continuum of their rehabilitation journey. Rehabilitation professionals should place greater emphasis on client participation by asking people with stroke induced aphasia how they prefer to participate at different stages of rehabilitation. To ensure active participation for those who wants it, existing tools and techniques which promoted collaborative goal setting should be better incorporated.
关于失语症康复中服务对象参与的研究数量在不断增加，但关于如何将其应用于临床实践的证据仍然匮乏。特别是，人们要求纳入“内部人员视角”的重要性。本研究的目的是探讨失语症患者在语言康复的目标设定和临床决策过程中对服务对象参与的体验。
15名中风所致失语症患者参与了半结构化深度访谈。采用系统文本浓缩法进行定性分析。
分析揭示了四个主要主题：（1）对服务满意，（2）语言康复中的模糊性，（3）存在个人目标，（4）期望的参与程度。
尽管中风所致失语症患者总体上对语言康复感到满意，但仍需要更加强调使语言康复框架不那么模糊。治疗师还应花更多时间与中风所致失语症患者合作，并使用可用方法支持沟通与协作。研究结果强调需要进一步探索在中风所致失语症患者的目标设定和临床决策中实施服务对象参与的潜在结果。对康复的启示：所有中风所致失语症患者不仅应在康复过程中被询问一次康复目标，而且应在整个康复过程中都被询问。康复专业人员应通过询问中风所致失语症患者他们希望在康复的不同阶段如何参与，来更加强调服务对象的参与。为确保那些希望积极参与的人能够参与，应更好地整合现有的促进协作目标设定的工具和技术。
