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酒渣鼻患者的耻辱感。

Feelings of stigmatization in patients with rosacea.

作者信息

Halioua B, Cribier B, Frey M, Tan J

机构信息

Institut Alfred Fournier, Paris, France.

Clinique Dermatologique, Université de Strasbourg et Hôpitaux Universitaires de Strasbourg, Strasbourg, France.

出版信息

J Eur Acad Dermatol Venereol. 2017 Jan;31(1):163-168. doi: 10.1111/jdv.13748. Epub 2016 Jun 21.

Abstract

BACKGROUND

Rosacea is a chronic facial disease that may lead to feelings of stigmatization, which can negatively impact psychological and social well-being.

OBJECTIVE

The aim of this study was to evaluate different aspects of rosacea that could contribute to feelings of stigmatization.

METHODS

An online survey of a representative sample of the adult population in the UK, France, Germany and US was conducted to identify patients with rosacea based on presence of three or more clinical features.

RESULTS

Among the patients who completed the survey (n = 807), mean age at first sign/symptom of rosacea was 31.3 ± 14.5 years; mean duration of disease was 102 ± 119 months. One-third of patients reported feelings of stigmatization (FS; n = 275). Male patients were more likely to experience FS (49% vs. 37.2% in non-FS population; P = 0.0037). Those with FS were more likely to avoid social situations (54.2% vs. 2.0%, P < 1.00 ) and had a higher rate of depression (36.7% vs. 21.1%, P < 1.00 ).

CONCLUSIONS

Stigmatization is important in the daily lives of those with rosacea and should be taken into consideration in the management of these patients.

摘要

背景

酒渣鼻是一种慢性面部疾病,可能导致耻辱感,这会对心理和社会幸福感产生负面影响。

目的

本研究的目的是评估酒渣鼻可能导致耻辱感的不同方面。

方法

对英国、法国、德国和美国成年人口的代表性样本进行在线调查,根据三种或更多临床特征的存在来识别酒渣鼻患者。

结果

在完成调查的患者中(n = 807),酒渣鼻首次出现体征/症状时的平均年龄为31.3±14.5岁;疾病的平均持续时间为102±119个月。三分之一的患者报告有耻辱感(FS;n = 275)。男性患者更有可能经历耻辱感(49% 对非耻辱感人群中的37.2%;P = 0.0037)。有耻辱感的人更有可能避免社交场合(54.2% 对2.0%,P < 1.00),并且抑郁症发病率更高(36.7% 对21.1%,P < 1.00)。

结论

耻辱感在酒渣鼻患者的日常生活中很重要,在这些患者的管理中应予以考虑。

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