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在接受注射用化疗药物治疗的整个疗程之前,癌症患者了解的信息有多充分?

How well Informed are Cancer Patients Prior to a Life Cycle of Injectable Chemotherapy Drug Treatment?

作者信息

Jobard Marion, Sejean Karine, Lepage-Seydoux Coralie, Bonan Brigitte

机构信息

Pharmacy Department, Foch Hospital, 40 rue Worth, 92150, Suresnes, France.

出版信息

J Cancer Educ. 2018 Feb;33(1):74-82. doi: 10.1007/s13187-016-1079-1.

Abstract

Cancer patient dissatisfaction, due to a long waiting time for chemotherapy treatment, is a common complaint. To improve patient satisfaction, our pharmaceutical team was prompted to design a series of information tools for injectable chemotherapy drug treatment (ICDT) patients. This study was based on French Health Authorities recommendations. All three stages were monitored: the preparation stage using a 204 patient survey, the design stage, and the assessment stage with a 12 point questionnaire patient evaluation. An information brochure and a 10-min film were designed which chronologically described key stages in the life cycle of ICDT. Both tools were assessed by 29 and 84 patients respectively. The questionnaire confirmed that this approach met the needs of more than 90 % of patients. The brochure and the film also accurately met the objectives and improved the understanding of the chemotherapy long waiting time which resulted in higher patient satisfaction. The designed tools will continue to evolve with changes in oncology practices based on various indicators defined in the study. Our study proposes an original method to assist health professionals to better inform cancer patients regarding the preparation of ICDT. It is also a part of a continuous quality program to assure quality outpatient healthcare.

摘要

由于化疗治疗等待时间过长,癌症患者不满是常见的抱怨。为提高患者满意度,我们的药学团队着手为注射用化疗药物治疗(ICDT)患者设计一系列信息工具。本研究基于法国卫生当局的建议。对所有三个阶段进行了监测:使用204份患者调查问卷的准备阶段、设计阶段以及采用12分问卷进行患者评估的评估阶段。设计了一本信息手册和一部10分钟的影片,按时间顺序描述了ICDT生命周期中的关键阶段。这两种工具分别由29名和84名患者进行了评估。调查问卷证实,这种方法满足了90%以上患者的需求。手册和影片也准确地达到了目标,提高了对化疗长时间等待的理解,从而提高了患者满意度。所设计的工具将根据研究中定义的各种指标,随着肿瘤学实践的变化而不断发展。我们的研究提出了一种原创方法,以协助医疗专业人员更好地向癌症患者介绍ICDT的准备情况。它也是确保优质门诊医疗的持续质量计划的一部分。

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