Molin Katrine Rutkær, Egerod Ingrid, Valentiner Laura Staun, Lange Peter, Langberg Henning
CopenRehab, Section of Social Medicine, Department of Public Health, University of Copenhagen, Copenhagen, Denmark.
Department of Neuroanaesthesiology, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
Int J Chron Obstruct Pulmon Dis. 2016 Aug 17;11:1929-37. doi: 10.2147/COPD.S108611. eCollection 2016.
In Denmark, the treatment of COPD is mainly managed by general practitioners (GPs). Pulmonary rehabilitation (PR) is available to patients with COPD in the local community by GP referral, but in practice, many patients do not participate in rehabilitation. The aim of our study was to explore 1) GPs' perceptions of their role and responsibility in the rehabilitation of patients with COPD, and 2) GPs' perceptions of how patients manage their COPD.
The study was based on a qualitative design with semi-structured key-informant interviews with GPs. Investigator triangulation was applied during data generation, and analysis was done using thematic analysis methodology.
Our main findings were that GPs relied on patients themselves to take the initiative to make clinic appointments and on professionals at health centers to provide the PR including consultations on lifestyle changes. The GPs experienced that patients chose to come to the clinic when they were in distress and that patients either declined or had poor adherence to rehabilitation when offered. The GPs were relieved that the health centers had taken over the responsibility of rehabilitation as GPs lacked the resources to discuss rehabilitation and follow up on individual plans.
Our study suggested a potential self-reinforcing problem with the treatment of COPD being mainly focused on medication rather than on PR. Neither GPs nor patients used a proactive approach. Further, GPs were not fully committed to discuss non-pharmacological treatment and perceived the patients as unmotivated for PR. As such, there is a need for optimizing non-pharmacological treatment of COPD and in particular the referral process to PR.
在丹麦,慢性阻塞性肺疾病(COPD)的治疗主要由全科医生(GPs)负责。通过全科医生转诊,当地社区的慢性阻塞性肺疾病患者可接受肺康复(PR)治疗,但在实际中,许多患者并未参与康复治疗。我们研究的目的是探讨:1)全科医生对其在慢性阻塞性肺疾病患者康复治疗中的角色和责任的看法;2)全科医生对患者如何管理自身慢性阻塞性肺疾病的看法。
该研究基于定性设计,对全科医生进行半结构化关键信息访谈。在数据收集过程中采用了调查者三角互证法,并使用主题分析法进行分析。
我们的主要发现是,全科医生依赖患者主动预约门诊,并依赖健康中心的专业人员提供肺康复治疗,包括关于生活方式改变的咨询。全科医生发现,患者在感到不适时才会选择前来门诊,并且当提供康复治疗时,患者要么拒绝,要么依从性差。由于全科医生缺乏讨论康复治疗和跟进个人计划的资源,健康中心接管了康复治疗的责任,这让全科医生松了一口气。
我们的研究表明,慢性阻塞性肺疾病的治疗可能存在一个潜在的自我强化问题,即主要侧重于药物治疗而非肺康复治疗。全科医生和患者都没有采取积极主动的方法。此外,全科医生并未完全致力于讨论非药物治疗,并且认为患者对肺康复治疗缺乏积极性。因此,有必要优化慢性阻塞性肺疾病的非药物治疗,尤其是肺康复治疗的转诊流程。