Leiulfsrud Annelie Schedin, Ruoranen Kaisa, Ostermann Anne, Reinhardt Jan D
Department of Physical Medicine and Rehabilitation, Spinal Cord Unit, St. Olav University Hospital, Trondheim, Norway.
Swiss Paraplegic Research, Nottwil, Switzerland.
Work. 2016 Sep 27;55(1):133-144. doi: 10.3233/WOR-162381.
People with spinal cord injuries (SCI) are underrepresented in the labour force.
To examine the meaning of employment, as it is understood in the context of participation and integration in society, among persons with SCI in six European countries. We ask how SCI relates to employment, for the functions of employment, alternatives to employment, and its obstacles.
Semi-structured interviews were conducted with 74 persons and qualitatively analysed using a grounded theory approach.
Employment was ranked as very important independent of the participants current employment status. We identified three main functions of employment: 1) employment contributes to the creation of personal and collective identity and social recognition; 2) employment enables structuring of time and distracts from impairment and pain; 3) employment is as an important social arena that facilitates interaction with other people. Voluntary work and domestic work did not fully replace the social functions of employment, nor correspond to the design of the disability compensation systems.
This study illustrates the high value of employment and a need to pay more attention to a broader range of productive work. It also reveals the interdependencies between employment status and income mediated by the disability compensation schemes.
脊髓损伤（SCI）患者在劳动力中所占比例较低。
探讨在六个欧洲国家的脊髓损伤患者中，就业在社会参与和融入背景下的意义。我们研究脊髓损伤与就业的关系，包括就业的功能、就业替代方式及其障碍。
对74人进行了半结构化访谈，并采用扎根理论方法进行定性分析。
无论参与者当前的就业状况如何，就业都被认为非常重要。我们确定了就业的三个主要功能：1）就业有助于塑造个人和集体身份以及社会认可；2）就业使时间得以规划，并分散对损伤和疼痛的注意力；3）就业是一个重要的社交场所，便于与他人互动。志愿工作和家务劳动并不能完全取代就业的社会功能，也不符合残疾补偿制度的设计。
本研究表明就业具有很高的价值，需要更加关注更广泛的生产性工作。它还揭示了残疾补偿计划所介导的就业状况与收入之间的相互依存关系。
