• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

调查哪些措施对支持痴呆症患者的家庭照顾者有效:快速务实审查。

Investigating what works to support family carers of people with dementia: a rapid realist review.

机构信息

Faculty of Health and Life Sciences, Northumbria University, Newcastle Upon Tyne NE7 7XA, UK.

Fuse, Centre for Translational Research in Public Health, Institute of Health & Society, Newcastle University, Baddiley-Clark Building, Richardson Road, Newcastle Upon Tyne NE2 4AX, UK.

出版信息

J Public Health (Oxf). 2017 Dec 1;39(4):e290-e301. doi: 10.1093/pubmed/fdw100.

DOI:10.1093/pubmed/fdw100
PMID:27679663
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5939885/
Abstract

INTRODUCTION

Advances in longevity and medicine mean that many more people in the UK survive life-threatening diseases but are instead susceptible to life-limiting diseases such as dementia. Within the next 10 years those affected by dementia in the UK is set to rise to over 1 million, making reliance on family care of people with dementia (PWD) essential. A central challenge is how to improve family carer support to offset the demands made by dementia care which can jeopardise carers' own health. This review investigates 'what works to support family carers of PWD'.

METHODS

Rapid realist review of a comprehensive range of databases.

RESULTS

Five key themes emerged: (1) extending social assets, (2) strengthening key psychological resources, (3) maintaining physical health status, (4) safeguarding quality of life and (5) ensuring timely availability of key external resources. It is hypothesized that these five factors combine and interact to provide critical biopsychosocial and service support that bolsters carer 'resilience' and supports the maintenance and sustenance of family care of PWD.

CONCLUSIONS

'Resilience-building' is central to 'what works to support family carers of PWD'. The resulting model and Programme Theories respond to the burgeoning need for a coherent approach to carer support.

摘要

简介

长寿和医学的进步意味着英国有更多的人能够从危及生命的疾病中存活下来,但却容易患上痴呆等生命受限的疾病。在未来 10 年内,英国受痴呆症影响的人数预计将上升到 100 多万,这使得依赖家庭照顾痴呆症患者(PWD)成为必要。一个核心挑战是如何改善家庭护理人员的支持,以抵消痴呆症护理带来的需求,因为这可能会危及护理人员自身的健康。本研究调查了“支持痴呆症患者家属的有效方法”。

方法

对广泛的数据库进行快速现实主义审查。

结果

出现了五个关键主题:(1)扩展社会资产,(2)增强关键心理资源,(3)保持身体健康状况,(4)维护生活质量,(5)确保关键外部资源的及时可用性。据推测,这五个因素结合并相互作用,为护理人员提供了关键的生物心理社会和服务支持,增强了他们的“韧性”,并支持了对 PWD 的家庭护理的维持和持续。

结论

“培养韧性”是“支持痴呆症患者家属的有效方法”的核心。由此产生的模型和方案理论回应了对协调一致的护理人员支持方法的迫切需求。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2542/5939885/1c7ccd0ac334/fdw100f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2542/5939885/dc7378fd7531/fdw100f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2542/5939885/1c7ccd0ac334/fdw100f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2542/5939885/dc7378fd7531/fdw100f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/2542/5939885/1c7ccd0ac334/fdw100f02.jpg

相似文献

1
Investigating what works to support family carers of people with dementia: a rapid realist review.调查哪些措施对支持痴呆症患者的家庭照顾者有效:快速务实审查。
J Public Health (Oxf). 2017 Dec 1;39(4):e290-e301. doi: 10.1093/pubmed/fdw100.
2
Strategies to improve continuity maintenance for people with dementia: a rapid realist review.提高痴呆症患者连续性维护的策略:快速现实主义综述。
Public Health. 2020 Apr;181:46-52. doi: 10.1016/j.puhe.2019.11.024. Epub 2020 Jan 13.
3
Factors associated with the quality of life of family carers of people with dementia: A systematic review.与痴呆症患者的家庭照顾者生活质量相关的因素:系统评价。
Alzheimers Dement. 2017 May;13(5):572-581. doi: 10.1016/j.jalz.2016.12.010. Epub 2017 Feb 5.
4
Effectiveness of psychosocial interventions on the psychological health and emotional well-being of family carers of people with dementia following residential care placement: a systematic review.社会心理干预对痴呆症患者入住机构照料后家庭照料者心理健康和情绪幸福感的有效性:一项系统综述
JBI Database System Rev Implement Rep. 2018 May;16(5):1240-1268. doi: 10.11124/JBISRIR-2017-003634.
5
Initiating activities of daily living contributes to well-being in people with dementia and their carers.日常活动的开展有助于痴呆症患者及其照顾者的幸福感。
Int J Geriatr Psychiatry. 2018 Jan;33(1):e94-e102. doi: 10.1002/gps.4728. Epub 2017 May 3.
6
Coping but not allowing the coping to be everything: Resilience in informal dementia care.应对而非让应对成为一切:非正式痴呆症护理中的韧性。
Health Soc Care Community. 2019 Jul;27(4):e289-e297. doi: 10.1111/hsc.12732. Epub 2019 Mar 7.
7
Advance Care Planning in Dementia: Do Family Carers Know the Treatment Preferences of People with Early Dementia?痴呆症患者的预先护理计划:家庭护理人员是否了解早期痴呆症患者的治疗偏好?
PLoS One. 2016 Jul 13;11(7):e0159056. doi: 10.1371/journal.pone.0159056. eCollection 2016.
8
Experience of burden in carers of people with dementia on the margins of long-term care.长期护理边缘痴呆症患者护理者的负担体验。
Int J Geriatr Psychiatry. 2016 Feb;31(2):101-8. doi: 10.1002/gps.4295. Epub 2015 May 11.
9
Depression and Anxiety Among Partner and Offspring Carers of People With Dementia: A Systematic Review.痴呆患者的伴侣和子女照顾者中的抑郁和焦虑:系统评价。
Gerontologist. 2019 Sep 17;59(5):e597-e610. doi: 10.1093/geront/gny049.
10
Effectiveness of START psychological intervention in reducing abuse by dementia family carers: randomized controlled trial.START心理干预对减少痴呆症家庭照料者虐待行为的有效性:随机对照试验。
Int Psychogeriatr. 2016 Jun;28(6):881-7. doi: 10.1017/S1041610215002033. Epub 2015 Dec 11.

引用本文的文献

1
Digital Dementia Education and Training for Informal Carers: A Scoping Review.针对非正式照料者的数字痴呆症教育与培训:一项范围综述
J Clin Nurs. 2025 Oct;34(10):3981-3994. doi: 10.1111/jocn.17817. Epub 2025 May 28.
2
Participatory methods in designing digital health interventions for informal caregivers of people with dementia. A systematic review.为痴呆症患者的非正式照护者设计数字健康干预措施中的参与式方法。一项系统综述。
Internet Interv. 2024 Dec 28;39:100799. doi: 10.1016/j.invent.2024.100799. eCollection 2025 Mar.
3
Telephone and online support programs and assistive technologies that support informal carers of people living with young-onset dementia: A systematic review.

本文引用的文献

1
Different effects of rumination on depression: key role of hope.沉思对抑郁的不同影响:希望的关键作用。
Int J Ment Health Syst. 2014 Dec 13;8:53. doi: 10.1186/1752-4458-8-53. eCollection 2014.
2
What's in a mechanism? Development of a key concept in realist evaluation.机制中包含什么?现实主义评价中一个关键概念的发展。
Implement Sci. 2015 Apr 16;10:49. doi: 10.1186/s13012-015-0237-x.
3
'The living death of Alzheimer's' versus 'Take a walk to keep dementia at bay': representations of dementia in print media and carer discourse.
支持早发性痴呆症患者非正式照料者的电话和在线支持项目及辅助技术:一项系统综述。
Dementia (London). 2025 Aug;24(6):1196-1222. doi: 10.1177/14713012251321558. Epub 2025 Feb 14.
4
'Caring beyond capacity' during the coronavirus pandemic: resilience and family carers of people with dementia from the IDEAL cohort.新冠疫情期间“超出能力范围的照料”:来自IDEAL队列研究的痴呆症患者的适应力与家庭照料者
Int J Care Caring. 2024 May;8(2):246-263. doi: 10.1332/239788221X16819328227036.
5
Uptake and Use of Care Companion, a Web-Based Information Resource for Supporting Informal Carers of Older People: Mixed Methods Study.关爱伴侣的使用与采纳情况:一项混合方法研究,关爱伴侣是一种基于网络的信息资源,用于支持老年人的非正式照料者
JMIR Aging. 2023 Sep 21;6:e41185. doi: 10.2196/41185.
6
Collaborative Learning through a Virtual Community of Practice in Dementia Care Support: A Scoping Review.通过痴呆症护理支持虚拟实践社区进行协作学习:一项范围综述
Healthcare (Basel). 2023 Feb 26;11(5):692. doi: 10.3390/healthcare11050692.
7
How both positive and burdensome caregiver experiences are associated with care recipient cognitive performance: Evidence from the National Health and Aging Trends Study and National Study of Caregiving.积极和负担重的照护者体验如何与照护对象的认知表现相关:来自国家健康老龄化趋势研究和国家照护研究的证据。
Front Public Health. 2023 Feb 13;11:1130099. doi: 10.3389/fpubh.2023.1130099. eCollection 2023.
8
How do family carers and care-home staff manage refusals when assisting a person with advanced dementia with their personal care?当帮助患有晚期痴呆症的人进行个人护理时,家庭护理员和养老院工作人员如何应对拒绝?
Dementia (London). 2022 Nov;21(8):2458-2475. doi: 10.1177/14713012221123578. Epub 2022 Sep 2.
9
Examining the Impact of Different Components of Sleep Quality on Anxiety Among Family Carers of People with Dementia.探究睡眠质量的不同组成部分对痴呆症患者家庭照料者焦虑情绪的影响。
J Geriatr Psychiatry Neurol. 2023 Jan;36(1):63-72. doi: 10.1177/08919887221093359. Epub 2022 Apr 18.
10
Integrative review of singing and music interventions for family carers of people living with dementia.综合回顾歌唱和音乐干预对痴呆症患者家庭照顾者的影响。
Health Promot Int. 2022 Jun 2;37(Supplement_1):i49-i61. doi: 10.1093/heapro/daac024.
“阿尔茨海默病的活死人状态”与“散步预防痴呆症”:平面媒体和护理者话语中痴呆症的呈现
Sociol Health Illn. 2014 Jul;36(6):885-901. doi: 10.1111/1467-9566.12122. Epub 2014 Jun 17.
4
Improving organizational capacity to address health literacy in public health: a rapid realist review.提高公共卫生领域健康素养的组织能力:快速务实的综述。
Public Health. 2014 Jun;128(6):515-24. doi: 10.1016/j.puhe.2014.01.014. Epub 2014 Jun 9.
5
Why do dementia patients become unable to lead a daily life with decreasing cognitive function?为什么痴呆症患者的认知功能下降,会导致他们无法自理日常生活?
Dementia (London). 2013 Sep;12(5):551-68. doi: 10.1177/1471301211435193. Epub 2012 Mar 16.
6
A time-responsive tool for informing policy making: rapid realist review.一个用于为政策制定提供信息的及时响应工具:快速现实主义审查。
Implement Sci. 2013 Sep 5;8:103. doi: 10.1186/1748-5908-8-103.
7
Short-term changes in sleep, mastery & stress: impacts on depression and health in dementia caregivers.睡眠、掌控感与压力的短期变化:对痴呆症照料者抑郁及健康的影响
Geriatr Nurs. 2013 Nov-Dec;34(6):509-16. doi: 10.1016/j.gerinurse.2013.07.002. Epub 2013 Aug 22.
8
The effect of coping on the burden in family carers of persons with dementia.应对方式对痴呆患者家庭照顾者负担的影响。
Aging Ment Health. 2013;17(8):973-8. doi: 10.1080/13607863.2013.790928. Epub 2013 Apr 24.
9
Suicidal ideation in family carers of people with dementia: a pilot study.痴呆患者家属的自杀意念:一项初步研究。
Int J Geriatr Psychiatry. 2013 Nov;28(11):1182-8. doi: 10.1002/gps.3941. Epub 2013 Mar 4.
10
RAMESES publication standards: realist syntheses.RAMSES 出版规范:现实主义综合研究。
BMC Med. 2013 Jan 29;11:21. doi: 10.1186/1741-7015-11-21.