Faculty of Health and Life Sciences, Northumbria University, Newcastle Upon Tyne NE7 7XA, UK.
Fuse, Centre for Translational Research in Public Health, Institute of Health & Society, Newcastle University, Baddiley-Clark Building, Richardson Road, Newcastle Upon Tyne NE2 4AX, UK.
J Public Health (Oxf). 2017 Dec 1;39(4):e290-e301. doi: 10.1093/pubmed/fdw100.
Advances in longevity and medicine mean that many more people in the UK survive life-threatening diseases but are instead susceptible to life-limiting diseases such as dementia. Within the next 10 years those affected by dementia in the UK is set to rise to over 1 million, making reliance on family care of people with dementia (PWD) essential. A central challenge is how to improve family carer support to offset the demands made by dementia care which can jeopardise carers' own health. This review investigates 'what works to support family carers of PWD'.
Rapid realist review of a comprehensive range of databases.
Five key themes emerged: (1) extending social assets, (2) strengthening key psychological resources, (3) maintaining physical health status, (4) safeguarding quality of life and (5) ensuring timely availability of key external resources. It is hypothesized that these five factors combine and interact to provide critical biopsychosocial and service support that bolsters carer 'resilience' and supports the maintenance and sustenance of family care of PWD.
'Resilience-building' is central to 'what works to support family carers of PWD'. The resulting model and Programme Theories respond to the burgeoning need for a coherent approach to carer support.
长寿和医学的进步意味着英国有更多的人能够从危及生命的疾病中存活下来,但却容易患上痴呆等生命受限的疾病。在未来 10 年内,英国受痴呆症影响的人数预计将上升到 100 多万,这使得依赖家庭照顾痴呆症患者(PWD)成为必要。一个核心挑战是如何改善家庭护理人员的支持,以抵消痴呆症护理带来的需求,因为这可能会危及护理人员自身的健康。本研究调查了“支持痴呆症患者家属的有效方法”。
对广泛的数据库进行快速现实主义审查。
出现了五个关键主题:(1)扩展社会资产,(2)增强关键心理资源,(3)保持身体健康状况,(4)维护生活质量,(5)确保关键外部资源的及时可用性。据推测,这五个因素结合并相互作用,为护理人员提供了关键的生物心理社会和服务支持,增强了他们的“韧性”,并支持了对 PWD 的家庭护理的维持和持续。
“培养韧性”是“支持痴呆症患者家属的有效方法”的核心。由此产生的模型和方案理论回应了对协调一致的护理人员支持方法的迫切需求。