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情绪失调量表的编制:一种用于创建自闭症谱系障碍敏感且无偏问卷的 PROMIS 方法。

Development of the Emotion Dysregulation Inventory: A PROMIS®ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder.

机构信息

Department of Psychiatry, University of Pittsburgh School of Medicine, 3811 O'Hara Street, Webster Hall Suite 300, Pittsburgh, PA, 15213, USA.

Department of Psychology, Florida State University, Tallahassee, FL, USA.

出版信息

J Autism Dev Disord. 2018 Nov;48(11):3736-3746. doi: 10.1007/s10803-016-2907-1.

DOI:10.1007/s10803-016-2907-1
PMID:27699685
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5378674/
Abstract

The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS®) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability.

摘要

自闭症谱系障碍(ASD)患者的功能范围广泛,目前缺乏敏感的评估手段,这成为治疗开发和监测的障碍。情绪失调量表(EDI)是一种由照顾者报告的问卷,旨在捕捉情绪困扰和情绪调节问题,适用于语言能力低和语言能力高的个体。本文介绍了 EDI 发展的前两个阶段,包括:(1)利用患者报告结局测量信息系统(PROMIS®)项目的方法来开发项目池和反应选项;(2)评估 ASD 住院精神病人的 EDI。结果表明,EDI 可捕捉广泛的情绪失调,对变化敏感,且不受语言或智力能力的影响。

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