London Leslie, Cox Helen, Coomans Fons
Professor of Public Health Medicine and head of the Health and Human Rights Program in the School of Public Health and Family Medicine, University of Cape Town, South Africa.
Wellcome Trust Intermediate Fellow in the Division of Medical Microbiology, Department of Pathology, University of Cape Town, South Africa.
Health Hum Rights. 2016 Jun;18(1):25-41.
The right to enjoy the benefits of scientific progress (REBSP) is a little-known but potentially valuable right that can contribute to rights-based approaches to addressing multidrug-resistant TB (MDR-TB). We argue that better understanding of the REBSP may help to advance legal and civil society action for health rights. While the REBSP does not provide an individual entitlement to have a new drug developed for MDR-TB, it sets up entitlements to expect a state to establish a legislative and policy framework aimed at developing scientific capacity to address the most important health issues and at disseminating the outcomes of scientific research. By making scientific findings available and accessible, people can be enabled to claim the use of science for social benefits. Inasmuch as the market fails to address neglected diseases such as MDR-TB, the REBSP provides a potential counterbalance to frame a positive obligation on states to both marshal their own resources and to coordinate the actions of multiple other actors towards this goal, including non-state actors. While the latter do not hold the same level of accountability as states, the REBSP can still enable the recognition of obligations at a level of "soft law" responsibilities.
享受科学进步带来的益处的权利(REBSP)是一项鲜为人知但可能具有重要价值的权利,它有助于以基于权利的方法应对耐多药结核病(MDR-TB)。我们认为,更好地理解REBSP可能有助于推动为健康权采取的法律和民间社会行动。虽然REBSP并未赋予个人要求研发治疗耐多药结核病新药的权利,但它确立了一些权利,即期望国家建立一个立法和政策框架,旨在发展应对最重要健康问题的科学能力,并传播科学研究成果。通过使科学发现可得且可获取,人们能够主张将科学用于社会福祉。鉴于市场未能解决诸如耐多药结核病等被忽视的疾病,REBSP提供了一种潜在的制衡力量,用以确立国家的积极义务,即调动自身资源并协调包括非国家行为体在内的其他多个行为体为此目标采取的行动。虽然后者不像国家那样承担同等程度的问责,但REBSP仍能在“软法”责任层面促成对义务的认可。