Villani Murielle, Kovess-Masfety Viviane
Fondation Pierre Deniker, Paris, France.
Laboratoire de Psychopathologie et Processus de Santé, Université Paris Descartes, Boulogne-Billancourt, France.
JMIR Ment Health. 2017 Jan 3;4(1):e1. doi: 10.2196/mental.5946.
Studies show that the Internet has become an influential source of information for people experiencing serious psychiatric conditions such as schizophrenia spectrum disorders or other psychotic disorders, among which the rate of Internet users is growing, with rates ranging from 33.3% to 79.5% given the country. Between 20.5% and 56.4% of these Internet users seek mental health information.
Focusing on this population's Web searches about their mental health, this paper examines what type of content they look for and what could be the benefits and disadvantages of this navigation.
We conducted a literature review through medical and psychological databases between 2000 and 2015 using the keywords "Internet," "Web," "virtual," "health information," "schizophrenia," "psychosis," "e-mental health," "e-support," and "telepsychiatry."
People experiencing schizophrenia spectrum disorders or other psychotic disorders wish to find on the Internet trustful, nonstigmatizing information about their disease, flexibility, security standards, and positive peer-to-peer exchanges. E-mental health also appears to be desired by a substantial proportion of them. In this field, the current developments towards intervention and early prevention in the areas of depression and bipolar and anxiety disorders become more and more operational for schizophrenia spectrum disorders and other psychotic disorders as well. The many benefits of the Internet as a source of information and support, such as empowerment, enhancement of self-esteem, relief from peer information, better social interactions, and more available care, seem to outbalance the difficulties.
In this paper, after discussing the challenges related to the various aspects of the emergence of the Internet into the life of people experiencing schizophrenia spectrum disorders or other psychotic disorders, we will suggest areas of future research and practical recommendations for this major transition.
研究表明,互联网已成为患有严重精神疾病(如精神分裂症谱系障碍或其他精神障碍)的人群获取信息的重要来源,其中互联网用户比例不断上升,不同国家的比例在33.3%至79.5%之间。这些互联网用户中有20.5%至56.4%会搜索心理健康信息。
本文聚焦于这一人群在网上搜索心理健康信息的情况,研究他们查找的内容类型以及这种浏览行为可能带来的利弊。
我们在2000年至2015年间通过医学和心理学数据库进行文献综述,使用的关键词包括“互联网”“网络”“虚拟”“健康信息”“精神分裂症”“精神病”“电子心理健康”“电子支持”和“远程精神病学”。
患有精神分裂症谱系障碍或其他精神障碍的人群希望在互联网上找到关于其疾病的可信、无歧视性的信息、灵活性、安全标准以及积极的 peer-to-peer 交流。相当一部分人似乎也渴望电子心理健康服务。在这一领域,目前针对抑郁症、双相情感障碍和焦虑症的干预和早期预防方面的进展,对于精神分裂症谱系障碍和其他精神障碍也越来越具有可操作性。互联网作为信息和支持来源的诸多好处,如增强权能、提升自尊、减轻来自同伴的信息压力、改善社交互动以及获得更多可及的护理,似乎超过了困难之处。
在本文中,在讨论了互联网融入患有精神分裂症谱系障碍或其他精神障碍人群生活的各个方面所涉及的挑战之后,我们将提出未来研究的领域以及针对这一重大转变的实际建议。