Hauken May Aasebø, Senneseth Mette, Dyregrov Atle, Dyregrov Kari
Author Affiliations: Center for Crisis Psychology, Bergen (Drs Hauken and Senneseth, Mr Dyregov, and Mrs Dyregov); Faculty of Psychology, University of Bergen (Mr Dyregrov); and Bergen University College (Mrs Dyregrov), Norway.
Cancer Nurs. 2018 Jan/Feb;41(1):E19-E27. doi: 10.1097/NCC.0000000000000467.
Previous research on children living with parental cancer has mainly focused on the psychosocial challenges, but few studies have explored their health-related quality of life (HRQOL). This is important to promote well-being and discover areas of distress, as well as positive aspects of the children's life.
The aim of this study was to study how children's HRQOL is influenced by anxiety and whether age and gender act as moderators for this relationship.
This study used a survey with a cross-sectional design, including 35 children between 8 and 18 years old (mean, 13.3 years old) living with parental cancer. Questionnaires of HRQOL (Kinder Lebensqualität) and anxiety (Revised Child Manifest Anxiety Scale) were used.
The children reported higher anxiety and lower HRQOL than the controls. The children's physiological (P = .03), emotional (P = .04), and school (P = .00) functions were significantly impaired, whereas they scored in line with the controls on self-esteem, family, friends, and overall HRQOL. A negative correlation (r = -0.707, P < .01) between anxiety and HRQOL was found. Neither age nor gender acted as a moderator between anxiety and HRQOL.
A one-dimensional focus on anxiety may not capture these children's multidimensional challenges. In contrast, a focus on HRQOL may give important knowledge of the children's challenges, as well as areas where they function well.
Healthcare professionals need to work collaboratively across disciplines and have a multidimensional focus in caring for patients with cancer who have children. They must provide both the parents and children with adequate information and tools to handle their family health situation to promote the children's HRQOL.
以往关于父母患癌的儿童的研究主要集中在心理社会挑战方面，但很少有研究探讨他们的健康相关生活质量（HRQOL）。这对于促进幸福感、发现困扰领域以及了解儿童生活的积极方面都很重要。
本研究旨在探讨焦虑如何影响儿童的健康相关生活质量，以及年龄和性别是否在这种关系中起调节作用。
本研究采用横断面设计的调查，纳入了35名8至18岁（平均13.3岁）父母患癌的儿童。使用了健康相关生活质量问卷（儿童生活质量问卷）和焦虑问卷（修订版儿童显性焦虑量表）。
与对照组相比，这些儿童报告的焦虑水平更高，健康相关生活质量更低。儿童的生理功能（P = .03）、情绪功能（P = .04）和学校功能（P = .00）均受到显著损害，而他们在自尊、家庭、朋友和总体健康相关生活质量方面的得分与对照组相当。发现焦虑与健康相关生活质量之间存在负相关（r = -0.707，P < .01）。年龄和性别均未在焦虑与健康相关生活质量之间起调节作用。
仅关注焦虑的单一方面可能无法全面反映这些儿童所面临的多维度挑战。相比之下，关注健康相关生活质量可能会提供有关儿童挑战以及他们表现良好领域的重要信息。
医疗保健专业人员需要跨学科协作，在照顾有孩子的癌症患者时要有多维度的关注。他们必须为父母和孩子提供足够的信息和工具来应对家庭健康状况，以提高儿童的健康相关生活质量。
