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应对多发性硬化症的概念分析

Concept analysis of coping with multiple sclerosis.

作者信息

Dehghani Ali, Keshavarzi Abdolkhalegh, Jahromi Mohsen Faseleh, Shahsavari Isfahani Sara, Keshavarzi Soheila

机构信息

School of Nursing and Paramedical, Jahrom University of Medical Science, Jahrom, Iran.

Research Center for Noncommunicable Diseases, Jahrom University of Medical Sciences, Jahrom, Iran.

出版信息

Int J Nurs Sci. 2018 Apr 19;5(2):168-173. doi: 10.1016/j.ijnss.2018.04.009. eCollection 2018 Apr 10.

DOI:10.1016/j.ijnss.2018.04.009
PMID:31406820
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6626294/
Abstract

OBJECTIVE

The concept of coping with disease appears frequently in the literature; however, there is no precise definition of coping. The aim of this study is to clarify coping concept, and to identify its attributes, antecedents, and consequences in patients with multiple sclerosis.

METHODS

Rodgers' evolutionary method of concept analysis was used to clarify the concept of coping. A literature review was conducted with key terms 'multiple sclerosis', 'coping', 'adjustment', and 'deal with'. After searching databases, 1370 papers were found for the period 1995-2017. Finally, 55 articles and texts were selected for analysis. Data analysis was carried out using thematic analysis. An independent researcher checked the process to ensure credibility and reduce personal bias.

RESULTS

Coping with multiple sclerosis is a multidimensional concept with three main attributes: maintenance of emotional balance, acceptance of the disease, and self-regulation. Social support, awareness toward the disease, attitude toward the disease, and religious-spiritual beliefs were found as antecedents. Health promotion, adherence to treatment regimen, independence in personal life and social relationships, and improvement of family relationships were found as consequences of these attributes.

CONCLUSION

These findings not only add to the body of knowledge in health science, but also serve as an important motivation for further theory development and research in this context. Nurses and health professions can also benefit from a deeper understanding of coping concept in providing and planning healthcare for these patients.

摘要

目的

应对疾病的概念在文献中频繁出现;然而,应对并没有精确的定义。本研究的目的是阐明应对的概念,并确定其在多发性硬化症患者中的属性、前因和后果。

方法

采用罗杰斯的概念分析进化方法来阐明应对的概念。使用关键词“多发性硬化症”“应对”“调整”和“处理”进行文献综述。在搜索数据库后,发现了1995年至2017年期间的1370篇论文。最后,选择了55篇文章和文本进行分析。使用主题分析法进行数据分析。一名独立研究人员检查了该过程,以确保可信度并减少个人偏见。

结果

应对多发性硬化症是一个多维概念,具有三个主要属性:维持情绪平衡、接受疾病和自我调节。社会支持、对疾病的认知、对疾病的态度以及宗教-精神信仰被发现是前因。健康促进、坚持治疗方案、个人生活和社会关系中的独立性以及家庭关系的改善被发现是这些属性的后果。

结论

这些发现不仅增加了健康科学领域的知识体系,也为这一背景下的进一步理论发展和研究提供了重要动力。护士和健康专业人员在为这些患者提供和规划医疗保健时,也能从对应对概念的更深入理解中受益。

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本文引用的文献

1
Health-Related Coping and Social Interaction in People with Multiple Sclerosis Supported by a Social Network: Pilot Study With a New Methodological Approach.社交网络支持下的多发性硬化症患者的健康相关应对与社交互动:采用新方法的试点研究
Interact J Med Res. 2017 Jul 14;6(2):e10. doi: 10.2196/ijmr.7402.
2
Antecedents of Coping with the Disease in Patients with Multiple Sclerosis: A Qualitative Content Analysis.多发性硬化症患者应对疾病的前因:一项质性内容分析
Int J Community Based Nurs Midwifery. 2017 Jan;5(1):49-60.
3
Effects of Coping Skills Training on Quality of Life, Disease Biomarkers, and Clinical Outcomes in Patients With Heart Failure: A Randomized Clinical Trial.应对技能训练对心力衰竭患者生活质量、疾病生物标志物及临床结局的影响:一项随机临床试验
Circ Heart Fail. 2017 Jan;10(1). doi: 10.1161/CIRCHEARTFAILURE.116.003410.
4
Learning to live with multiple sclerosis cognitive impairment and how it influences readiness for group cognitive intervention.学习与多发性硬化症认知障碍共存以及它如何影响对团体认知干预的准备情况。
Disabil Health J. 2016 Oct;9(4):638-45. doi: 10.1016/j.dhjo.2016.04.010. Epub 2016 May 18.
5
Managing Menstruation: Moderating Role of Symptom Severity on Active Coping and Acceptance.应对月经:症状严重程度对积极应对和接纳的调节作用。
West J Nurs Res. 2016 May;38(5):553-71. doi: 10.1177/0193945915620055. Epub 2015 Dec 27.
6
Coping mediates and moderates the relationship between executive functions and psychological adjustment in multiple sclerosis.应对在多发性硬化症中调节并缓和了执行功能与心理调适之间的关系。
Neuropsychology. 2016 Mar;30(3):361-376. doi: 10.1037/neu0000256. Epub 2015 Nov 30.
7
Religious and spiritual interventions in mental health care: a systematic review and meta-analysis of randomized controlled clinical trials.心理健康护理中的宗教和精神干预:随机对照临床试验的系统评价和荟萃分析
Psychol Med. 2015 Oct;45(14):2937-49. doi: 10.1017/S0033291715001166. Epub 2015 Jul 23.
8
Coping among individuals with multiple sclerosis: Evaluating a goodness-of-fit model.多发性硬化症患者的应对方式:评估适配度模型
Rehabil Psychol. 2015 May;60(2):162-8. doi: 10.1037/rep0000032. Epub 2015 Mar 30.
9
Attitude towards physical activity in patients with multiple sclerosis: a cohort study.多发性硬化症患者对体育活动的态度:一项队列研究。
Neurol Sci. 2015 Jun;36(6):889-93. doi: 10.1007/s10072-015-2100-x. Epub 2015 Feb 4.
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The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) Statement: guidelines for reporting observational studies.《流行病学观察研究报告的强化(STROBE)声明:观察研究报告指南》。
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