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英国关于患有慢性消化系统疾病的青少年和青年从儿科护理过渡到成人护理的指南。

UK guideline on transition of adolescent and young persons with chronic digestive diseases from paediatric to adult care.

作者信息

Brooks Alenka J, Smith Philip J, Cohen Richard, Collins Paul, Douds Andrew, Forbes Valda, Gaya Daniel R, Johnston Brian T, McKiernan Patrick J, Murray Charles D, Sebastian Shaji, Smith Monica, Whitley Lisa, Williams Lesley, Russell Richard K, McCartney Sara A, Lindsay James O

机构信息

Academic Department of Gastroenterology, Sheffield Teaching Hospitals NHS Foundation Trust, Royal Hallamshire Hospital, Sheffield, UK.

Centre for Gastroenterology and Hepatology, Royal Free Hospital, London, UK.

出版信息

Gut. 2017 Jun;66(6):988-1000. doi: 10.1136/gutjnl-2016-313000. Epub 2017 Feb 21.

DOI:10.1136/gutjnl-2016-313000
PMID:28228488
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5532456/
Abstract

The risks of poor transition include delayed and inappropriate transfer that can result in disengagement with healthcare. Structured transition care can improve control of chronic digestive diseases and long-term health-related outcomes. These are the first nationally developed guidelines on the transition of adolescent and young persons (AYP) with chronic digestive diseases from paediatric to adult care. They were commissioned by the Clinical Services and Standards Committee of the British Society of Gastroenterology under the auspices of the Adolescent and Young Persons (A&YP) Section. Electronic searches for English-language articles were performed with keywords relating to digestive system diseases and transition to adult care in the Medline (via Ovid), PsycInfo (via Ovid), Web of Science and CINAHL databases for studies published from 1980 to September 2014. The quality of evidence and grading of recommendations was appraised using the Grading of Recommendations Assessment, Development and Evaluation (GRADE) system. The limited number of studies in gastroenterology and hepatology required the addition of relevant studies from other chronic diseases to be included.These guidelines deal specifically with the transition of AYP living with a diagnosis of chronic digestive disease and/or liver disease from paediatric to adult healthcare under the following headings;1. Patient populations involved in AYP transition2. Risks of failing transition or poor transition3. Models of AYP transition4. Patient and carer/parent perspective in AYP transition5. Surgical perspective.

摘要

过渡不佳的风险包括转诊延迟和不恰当,这可能导致患者脱离医疗保健体系。结构化的过渡护理可以改善慢性消化系统疾病的控制情况以及与长期健康相关的结果。这些是国内首部针对患有慢性消化系统疾病的青少年和青年从儿科护理过渡到成人护理而制定的指南。它们是在青少年和青年(A&YP)分会的支持下,由英国胃肠病学会临床服务与标准委员会委托制定的。通过在Medline(经由Ovid)、PsycInfo(经由Ovid)、科学网和CINAHL数据库中使用与消化系统疾病及向成人护理过渡相关的关键词,对1980年至2014年9月发表的英文文章进行了电子检索。使用推荐分级评估、制定和评价(GRADE)系统对证据质量和推荐分级进行了评估。由于胃肠病学和肝病学领域的研究数量有限,需要纳入其他慢性病的相关研究。这些指南专门针对患有慢性消化系统疾病和/或肝病的青少年和青年从儿科护理过渡到成人医疗保健的问题,涵盖以下主题:1. 参与青少年和青年过渡的患者群体;2. 过渡失败或不佳的风险;3. 青少年和青年过渡的模式;4. 青少年和青年过渡中患者及照顾者/家长的观点;5. 外科视角。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/80e6/5532456/182e8fdd3294/gutjnl-2016-313000f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/80e6/5532456/fdb7a6de78b8/gutjnl-2016-313000f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/80e6/5532456/182e8fdd3294/gutjnl-2016-313000f02.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/80e6/5532456/fdb7a6de78b8/gutjnl-2016-313000f01.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/80e6/5532456/182e8fdd3294/gutjnl-2016-313000f02.jpg

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Transition from childhood to adulthood in coeliac disease: the Prague consensus report.乳糜泻从儿童期到成年期的转变:布拉格共识报告。
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A multicenter prospective quasi-experimental study on the impact of a transition-oriented generic patient education program on health service participation and quality of life in adolescents and young adults.
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[Transition in gastroenterology and hepatology].[胃肠病学与肝病学的转变]
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