与复发性呼吸道乳头状瘤病相关网站的质量和可读性评估
Quality and readability assessment of websites related to recurrent respiratory papillomatosis.
作者信息
San Giorgi Michel R M, de Groot Olivier S D, Dikkers Frederik G
机构信息
Department of Otorhinolaryngology/Head & Neck Surgery, University Medical Center Groningen, Groningen, The Netherlands.
Graduate School of Medical Sciences (Cancer Research Center Groningen), Groningen, The Netherlands.
出版信息
Laryngoscope. 2017 Oct;127(10):2293-2297. doi: 10.1002/lary.26521. Epub 2017 Feb 24.
OBJECTIVE
Recurrent respiratory papillomatosis (RRP) is a rare disease for which a limited number of information sources for patients exist. The role of the Internet in the patient-physician relationship is increasing. More and more patients search for online health information, which should be of good quality and easy readable. The study aim was to investigate the quality and readability of English online health information about RRP.
STUDY DESIGN
Quality and readability assessment of online information.
METHODS
Relevant information was collected using three different search engines and seven different search terms. Quality was assessed with the DISCERN instrument. The Flesch Reading Ease Score (FRES) and average grade level (AGL) were determined to measure readability of the English websites.
RESULTS
Fifty-one English websites were included. The mean DISCERN score of the websites is 28.1 ± 9.7 (poor quality); the mean FRES is 41.3 ± 14.9 (difficult to read); and the mean AGL is 12.6 ± 2.3.
CONCLUSION
The quality and readability of English websites about RRP is alarmingly poor.
LEVEL OF EVIDENCE
NA. Laryngoscope, 127:2293-2297, 2017.
目的
复发性呼吸道乳头状瘤病（RRP）是一种罕见疾病，可供患者使用的信息来源有限。互联网在医患关系中的作用日益增强。越来越多的患者搜索在线健康信息，这些信息应质量良好且易于阅读。本研究旨在调查关于RRP的英文在线健康信息的质量和可读性。
研究设计
在线信息的质量和可读性评估。
方法
使用三个不同的搜索引擎和七个不同的搜索词收集相关信息。采用DISCERN工具评估质量。确定弗莱什易读性分数（FRES）和平均年级水平（AGL）以衡量英文网站的可读性。
结果
纳入了51个英文网站。这些网站的平均DISCERN评分为28.1±9.7（质量差）；平均FRES为41.3±14.9（难以阅读）；平均AGL为12.6±2.3。
结论
关于RRP的英文网站的质量和可读性差得惊人。
证据水平
无。《喉镜》，2017年，第127卷，第2293 - 2297页
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