Zimmerman Emily B, Cook Sarah K, Haley Amber D, Woolf Steven H, Price Sarah K
Center on Society and Health, Virginia Commonwealth University, Richmond, Virginia.
Center on Society and Health, Virginia Commonwealth University, Richmond, Virginia.
Am J Prev Med. 2017 Jul;53(1):123-129. doi: 10.1016/j.amepre.2017.01.034. Epub 2017 Mar 15.
A demonstration project in Richmond, Virginia involved patients and other stakeholders in the creation of a research agenda on dietary and behavioral management of diabetes and hypertension. Given the impact of these diseases on morbidity and mortality, considerable research has been directed at the challenges patients face in chronic disease management. The continuing need to understand disparities and find evidence-based interventions to improve outcomes has been fruitful, but disparities and unmet needs persist.
The Stakeholder Engagement in Question Development (SEED) method is a stakeholder engagement methodology that combines engagement with a review of available evidence to generate research questions that address current research gaps and are important to patients and other stakeholders. Using the SEED method, patients and other stakeholders participated in research question development through a combination of collaborative, participatory, and consultative engagement. Steps in the process included: (1) identifying the topic and recruiting participants; (2) conducting focus groups and interviews; (3) developing conceptual models; (4) developing research questions; and (5) prioritizing research questions.
Stakeholders were involved in the SEED process from February to August 2015. Eighteen questions were prioritized for inclusion in the research agenda, covering diverse domains, from healthcare provision to social and environmental factors. Data analysis took place September to May 2016. During this time, researchers conducted a literature review to target research gaps.
The stakeholder-prioritized, novel research questions developed through the SEED process can directly inform future research and guide the development of evidence that translates more directly to clinical practice.
弗吉尼亚州里士满的一个示范项目让患者及其他利益相关者参与制定了一项关于糖尿病和高血压饮食与行为管理的研究议程。鉴于这些疾病对发病率和死亡率的影响，针对患者在慢性病管理中面临的挑战已经开展了大量研究。持续需要了解差异并找到基于证据的干预措施以改善结果，这已取得丰硕成果，但差异和未满足的需求依然存在。
利益相关者参与问题开发（SEED）方法是一种利益相关者参与方法，它将参与与对现有证据的审查相结合，以生成解决当前研究空白且对患者和其他利益相关者很重要的研究问题。使用SEED方法，患者和其他利益相关者通过协作、参与和协商参与相结合的方式参与研究问题开发。该过程的步骤包括：（1）确定主题并招募参与者；（2）开展焦点小组讨论和访谈；（3）开发概念模型；（4）提出研究问题；（5）对研究问题进行排序。
利益相关者在2015年2月至8月期间参与了SEED过程。有18个问题被优先纳入研究议程，涵盖从医疗服务提供到社会和环境因素等不同领域。数据分析在2016年9月至5月进行。在此期间，研究人员进行了文献综述以找出研究空白。
通过SEED过程制定的由利益相关者优先确定的新颖研究问题可直接为未来研究提供信息，并指导更直接转化为临床实践的证据的开发。
