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患有先天性心脏病的儿童和青少年在学校相关方面的适应情况。

School-related adjustment in children and adolescents with CHD.

作者信息

Im Yu-Mi, Lee Sunhee, Yun Tae-Jin, Choi Jae Young

机构信息

1Seoul Women's College of Nursing,The Catholic University of Korea,Seoul,Korea.

2College of Nursing,The Catholic University of Korea,Seoul,Korea.

出版信息

Cardiol Young. 2017 Sep;27(7):1349-1355. doi: 10.1017/S1047951117000324. Epub 2017 Mar 20.

DOI:10.1017/S1047951117000324
PMID:28318457
Abstract

Advancements in medical and surgical treatment have increased the life expectancy of patients with CHD. Many patients with CHD, however, struggle with the medical, psychosocial, and behavioural challenges as they transition from childhood to adulthood. Specifically, the environmental and lifestyle challenges in school are very important factors that affect children and adolescents with CHD. This study aimed to evaluate school-related adjustments depending on school level and disclosure of disease in children and adolescents with CHD. This was a descriptive and exploratory study with 205 children and adolescents, aged 7-18 years, who were recruited from two congenital heart clinics from 5 January to 27 February, 2015. Data were analysed using the Student's t-test, analysis of variance, and a univariate general linear model. School-related adjustment scores were significantly different according to school level and disclosure of disease (p<0.001) when age, religion, experience being bullied, and parents' educational levels were assigned as covariates. The school-related adjustment score of patients who did not disclose their disease dropped significantly in high school. This indicated that it is important for healthcare providers to plan developmentally appropriate educational transition programmes for middle-school students with CHD in order for students to prepare themselves before entering high school.

摘要

医学和外科治疗的进步提高了冠心病患者的预期寿命。然而,许多冠心病患者在从儿童期过渡到成年期时,会面临医疗、心理社会和行为方面的挑战。具体而言,学校中的环境和生活方式挑战是影响患有冠心病的儿童和青少年的非常重要的因素。本研究旨在根据学校级别以及冠心病患儿和青少年对疾病的披露情况,评估与学校相关的适应情况。这是一项描述性和探索性研究,研究对象为205名年龄在7至18岁之间的儿童和青少年,他们于2015年1月5日至2月27日从两家先天性心脏病诊所招募而来。数据采用学生t检验、方差分析和单变量一般线性模型进行分析。当将年龄、宗教信仰、受欺负经历和父母教育水平作为协变量时,与学校相关的适应得分根据学校级别和疾病披露情况存在显著差异(p<0.001)。未披露疾病的患者在高中时与学校相关的适应得分显著下降。这表明,医疗服务提供者为患有冠心病的中学生制定适合其发育阶段的教育过渡计划非常重要,以便学生在进入高中之前做好准备。

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