Office of Health Economics, Southside 7th floor, 105 Victoria Street, London, SW1E 6QT, UK.
Centre for Health Economics and Research Evaluation, University of Technology Sydney, 1-59 Quay St, Haymarket, Sydney, NSW, 2000, Australia.
Patient. 2017 Dec;10(6):701-709. doi: 10.1007/s40271-017-0240-1.
The EQ-5D is a standardised instrument designed for use as a generic measure of health outcome. It was (and is) intended to provide information about a 'common core' of dimensions known to be relevant across a range of conditions; however, the five dimensions may not fully capture the health-related impacts of certain conditions. This study analyses the views of the UK general public about important aspects of health considered to be missing from the instrument.
Survey respondents were asked whether there are any aspects of health they consider to be important but are not captured by the EQ-5D, and, if so, what these aspects are. The responses (text comments) were analysed using content analysis with analyst triangulation. Data were collected from a broadly representative sample of the general public via a paper questionnaire administered as part of face-to-face interviews.
Data are available for 436 respondents, 179 of whom suggested aspects of health they considered important but not captured by the five EQ-5D dimensions. These were organised into 22 themes. Sensory deprivation and mental health were the health aspects most commonly mentioned by respondents.
Respondents identified several important aspects of health that are not covered by the EQ-5D descriptive system. This study can provide the basis for more detailed qualitative and quantitative research-in particular to examine the views of different patient groups-to inform further review of the EQ-5D descriptive system. The results also have implications for the sensitivity of other generic measures.
EQ-5D 是一种标准化的工具，旨在用作通用健康结果的衡量标准。它旨在提供与一系列疾病相关的已知“核心”维度的信息；然而，这五个维度可能无法完全捕捉到某些疾病对健康的相关影响。本研究分析了英国公众对该工具中缺失的重要健康方面的看法。
调查受访者被问及他们是否认为健康的某些方面很重要，但 EQ-5D 并未涵盖这些方面，如果有，这些方面是什么。使用内容分析和分析师三角分析对这些答复（文本评论）进行了分析。数据来自通过纸质问卷收集的具有广泛代表性的一般公众样本，这些问卷是作为面对面访谈的一部分进行管理的。
共有 436 名受访者提供了数据，其中 179 名受访者提出了他们认为重要但 EQ-5D 五个维度未涵盖的健康方面。这些方面被组织成 22 个主题。感官剥夺和心理健康是受访者最常提到的健康方面。
受访者确定了 EQ-5D 描述系统未涵盖的几个重要健康方面。这项研究可以为更详细的定性和定量研究提供基础，特别是为了检查不同患者群体的观点，以进一步审查 EQ-5D 描述系统。结果还对其他通用衡量标准的敏感性产生影响。
