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本文引用的文献

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Developing and testing culturally relevant bolt-on items for EQ-5D-5L in Chinese populations: a mixed-methods study protocol.为中国人群开发和测试与文化相关的EQ-5D-5L附加项目:一项混合方法研究方案
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2
Perceptions of the General Public About Health-related Quality of Life and the EQ-5D Questionnaire: A Qualitative Study in Korea.公众对健康相关生活质量和 EQ-5D 问卷的看法:韩国的一项定性研究。
J Prev Med Public Health. 2022 May;55(3):213-225. doi: 10.3961/jpmph.22.151. Epub 2022 May 31.
3
Criteria for developing, assessing and selecting candidate EQ-5D bolt-ons.开发、评估和选择 EQ-5D 附加模块的标准。
Qual Life Res. 2022 Oct;31(10):3041-3048. doi: 10.1007/s11136-022-03138-7. Epub 2022 Apr 29.
4
A qualitative investigation of the relevance of skin irritation and self-confidence bolt-ons and their conceptual overlap with the EQ-5D in patients with psoriasis.一项关于银屑病患者皮肤刺激和自我信心附加物的相关性及其与 EQ-5D 概念重叠的定性研究。
Qual Life Res. 2022 Oct;31(10):3049-3060. doi: 10.1007/s11136-022-03141-y. Epub 2022 Apr 26.
5
Health-Related Quality of Life Measurement in Public Health.公共卫生领域中与健康相关的生活质量测量
Annu Rev Public Health. 2022 Apr 5;43:355-373. doi: 10.1146/annurev-publhealth-052120-012811. Epub 2021 Dec 9.
6
Living with a chronic disease: insights from patients with a low socioeconomic status.患有慢性病:来自社会经济地位较低的患者的见解。
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Methods Used to Identify, Test, and Assess Impact on Preferences of Bolt-Ons: A Systematic Review.用于识别、测试和评估附加组件对偏好影响的方法:系统评价。
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10
Similarities and Differences in Health-Related Quality-of-Life Concepts Between the East and the West: A Qualitative Analysis of the Content of Health-Related Quality-of-Life Measures.中西方健康相关生命质量概念的异同:健康相关生命质量测量内容的定性分析。
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采用定性方法探索潜在的 EQ-5D 附加维度:在中国香港特别行政区的一项访谈研究。

Exploring potential EQ-5D bolt-on dimensions with a qualitative approach: an interview study in Hong Kong SAR, China.

机构信息

The Jockey Club School of Public Health and Primary Care, Faculty of Medicine, The Chinese University of Hong Kong, Hong Kong SAR, China.

Centre for Health Systems and Policy Research, The Jockey Club School of Public Health and Primary Care, Faculty of Medicine, The Chinese University of Hong Kong, Hong Kong SAR, China.

出版信息

Health Qual Life Outcomes. 2024 May 31;22(1):42. doi: 10.1186/s12955-024-02259-6.

DOI:10.1186/s12955-024-02259-6
PMID:38816769
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11141055/
Abstract

PURPOSE

The introduction of bolt-on dimensions in EQ-5D instruments is growing common, but most bolt-on studies have targeted the diseased population and obtained bolt-on from other existing Health-related Quality of Life (HRQoL) instruments. As the qualitative approach offers important evidence to support the consistency and design of the potential bolt-on items, this paper studies the Hong Kong SAR community's perception of the current EQ-5D-5 L instrument and identifies potential bolt-on via a qualitative approach.

METHODS

A representative sample mix was recruited based on the age group, gender, and education level composition of the Hong Kong SAR community by quota sampling. Semi-structured interviews were conducted and the interviews were transcribed and coded to identify emergent and recurrent themes.

RESULTS

Thirty interviews were conducted and the majority of the interviewees considered the EQ-5D-5 L insufficiently comprehensive to illustrate their HRQoL. While some key HRQoL aspects included in the EQ-5D matched with the community's HRQoL perception, respondents showed concern about the potential overlap of the existing HRQoL dimension, the optimal number or attributes, and the appropriateness of the EQ-VAS. Among the potential bolt-on dimensions that emerged, 'Sleep', 'Interpersonal Relationship', and 'Satisfaction' were the key potential bolt-on dimensions identified and emphasized in the interviews.

CONCLUSIONS

The qualitative findings of the study illustrate the possible gap between EQ-5D-5 L measurements and community HRQoL perception, while the findings support the development of EQ-5D bolt-on dimensions in the target community with content and face validity.

摘要

目的

EQ-5D 工具中引入附加维度越来越常见,但大多数附加研究都针对患病人群,并从其他现有的健康相关生活质量(HRQoL)工具中获取附加内容。由于定性方法提供了支持潜在附加项目一致性和设计的重要证据,本文通过定性方法研究了香港特别行政区社区对当前 EQ-5D-5L 工具的看法,并确定了潜在的附加内容。

方法

通过配额抽样,根据香港特别行政区社区的年龄组、性别和教育水平构成,招募了具有代表性的样本组合。进行了半结构化访谈,并对访谈进行了转录和编码,以确定出现的和反复出现的主题。

结果

进行了 30 次访谈,大多数受访者认为 EQ-5D-5L 不够全面,无法说明他们的 HRQoL。虽然 EQ-5D 中包含的一些关键 HRQoL 方面与社区的 HRQoL 感知相匹配,但受访者对现有 HRQoL 维度的潜在重叠、最佳数量或属性以及 EQ-VAS 的适当性表示关注。在出现的潜在附加维度中,“睡眠”、“人际关系”和“满意度”是访谈中确定和强调的关键潜在附加维度。

结论

研究的定性结果说明了 EQ-5D-5L 测量与社区 HRQoL 感知之间可能存在差距,同时研究结果支持在目标社区中开发具有内容和表面有效性的 EQ-5D 附加维度。