Pooler Charlotte
University of Alberta, Edmonton, Alberta, Canada.
Glob Qual Nurs Res. 2014 Oct 8;1:2333393614548762. doi: 10.1177/2333393614548762. eCollection 2014 Jan-Dec.
In this article, I present a phenomenological study of individuals' experiences of living with moderate to very severe chronic lower pulmonary disease (chronic obstructive pulmonary disease, asthma, or both). Phenomenology is a philosophy, distinct from descriptive or thematic research, which is useful as a foundation for scientific inquiry. In this study, I used the lens of Merleau-Ponty to understand and interpret participants' experiences of living with pulmonary disease, and the approach of van Manen for analysis. I conclude that in chronic pulmonary disease, awareness of breathing and the body is experienced in the sounds, sensations, and signals of breathing and the body, and in the experiences of the body-in-the-world. Central themes of being-in-the-world from the study describe the disruption of the embodied phenomenological self: Participants experienced slowing down, doing less, and having to stop due to shortness of breath. Both chronic and acute dyspnea were prevalent and the taken-for-granted aspects of daily activities were disrupted. Findings of this study have implications for public and patient education, and opportunities for integration of experiential aspects within nursing education and practice.
在本文中，我呈现了一项关于中度至非常严重的慢性下呼吸道疾病（慢性阻塞性肺疾病、哮喘或两者兼有）患者生活体验的现象学研究。现象学是一种哲学，不同于描述性或主题性研究，它作为科学探究的基础很有用。在本研究中，我运用梅洛 - 庞蒂的视角来理解和阐释参与者患肺部疾病的生活体验，并采用范曼恩的方法进行分析。我得出结论，在慢性肺部疾病中，对呼吸和身体的觉知体现在呼吸和身体的声音、感觉及信号中，以及在身体与世界的体验中。该研究中在世存在的核心主题描述了具身现象学自我的瓦解：参与者因呼吸急促而体验到行动放缓、活动减少且不得不停下。慢性和急性呼吸困难都很常见，日常活动中被视为理所当然的方面也被打乱。本研究结果对公众和患者教育具有启示意义，也为将体验性内容融入护理教育与实践提供了契机。
