Lakshminarayanan Subitha, Kar Sitanshu Sekhar, Gupta Rajeev, Xavier Denis, Bhaskar Reddy S Vijaya
Department of Preventive and Social Medicine, JIPMER, Puducherry, India.
Department of Medicine, Fortis Escorts Hospital, Jaipur, Rajasthan, India.
Indian J Endocrinol Metab. 2017 May-Jun;21(3):373-377. doi: 10.4103/ijem.IJEM_296_16.
Diabetes registries monitor the population prevalence and incidence of diabetes, monitor diabetes control program, provide information of quality of care to health service providers, and provide a sampling frame for interventional studies. This study documents the process of establishing a prospective diabetes registry in a primary health-care setting in Puducherry.
This is a facility-based prospective registry conducted in six randomly selected urban health centers in Puducherry, with enrollment of all known patients with diabetes attending chronic disease clinics. Administrative approvals were obtained from Government Health Services. Manuals for training of medical officers, health-care workers, and case report forms were developed. Diabetes registry was prepared using Epi Info software.
In the first phase, demographic characteristics, risk factors, complications, coexisting chronic conditions, lifestyle and medical management, and clinical outcomes were recorded. Around 2177 patients with diabetes have been registered in six Primary Health Centres out of a total of 2948 participants seeking care from chronic disease clinic. Registration coverage ranges from 61% to 105% in these centers.
This study has documented methodological details, and learning experiences gained while developing a diabetes registry at the primary health care level and the scope for upscaling to a Management Information System for Diabetes and a State-wide Registry. Improvement in patient care through needs assessment and quality assurance in service delivery is an important theme envisioned by this registry.
糖尿病登记系统可监测糖尿病的人群患病率和发病率，监控糖尿病控制项目，向医疗服务提供者提供医疗质量信息，并为干预性研究提供抽样框架。本研究记录了在本地治里市的基层医疗环境中建立前瞻性糖尿病登记系统的过程。
这是一项基于机构的前瞻性登记研究，在本地治里市随机选取的六个城市健康中心开展，纳入所有在慢性病门诊就诊的已知糖尿病患者。已获得政府卫生服务部门的行政批准。制定了针对医务人员、医护人员的培训手册以及病例报告表。使用Epi Info软件建立糖尿病登记系统。
在第一阶段，记录了人口统计学特征、危险因素、并发症、并存的慢性病、生活方式和医疗管理以及临床结局。在总共2948名到慢性病门诊寻求治疗的参与者中，六个初级卫生中心已登记了约2177名糖尿病患者。这些中心的登记覆盖率在61%至105%之间。
本研究记录了在基层医疗层面建立糖尿病登记系统时的方法学细节、学习经验以及扩大至糖尿病管理信息系统和全州范围登记系统的可能性。通过需求评估和服务提供中的质量保证来改善患者护理是该登记系统所设想的一个重要主题。
