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本文引用的文献

1
Potential Applications of Smart Multifunctional Wearable Materials to Gerontology.智能多功能可穿戴材料在老年医学中的潜在应用。
Gerontology. 2017;63(3):287-298. doi: 10.1159/000455011. Epub 2017 Jan 12.
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A Clinician's Guide to Privacy and Communication in the ICU.重症监护病房隐私与沟通临床指南
Crit Care Med. 2017 Mar;45(3):480-485. doi: 10.1097/CCM.0000000000002190.
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Open data models for smart health interconnected applications: the example of openEHR.用于智能健康互联应用的开放数据模型:以openEHR为例。
BMC Med Inform Decis Mak. 2016 Oct 22;16(1):137. doi: 10.1186/s12911-016-0376-2.
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Acute care patient portals: a qualitative study of stakeholder perspectives on current practices.急性护理患者门户网站:对利益相关者对当前实践看法的定性研究。
J Am Med Inform Assoc. 2017 Apr 1;24(e1):e9-e17. doi: 10.1093/jamia/ocw081.
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An informatics research agenda to support precision medicine: seven key areas.支持精准医学的信息学研究议程:七个关键领域。
J Am Med Inform Assoc. 2016 Jul;23(4):791-5. doi: 10.1093/jamia/ocv213. Epub 2016 Apr 23.
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Balancing digital information-sharing and patient privacy when engaging families in the intensive care unit.在重症监护病房让家属参与时平衡数字信息共享与患者隐私。
J Am Med Inform Assoc. 2016 Sep;23(5):995-1000. doi: 10.1093/jamia/ocv182. Epub 2016 Mar 16.
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Recent developments in the use of online resources and mobile technologies to support mental health care.利用在线资源和移动技术支持精神卫生保健的最新进展。
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A web-based, patient-centered toolkit to engage patients and caregivers in the acute care setting: a preliminary evaluation.一种基于网络的、以患者为中心的工具包,用于在急性护理环境中让患者和护理人员参与其中:初步评估。
J Am Med Inform Assoc. 2016 Jan;23(1):80-7. doi: 10.1093/jamia/ocv093. Epub 2015 Aug 2.
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Reducing the risk of harm from medication errors in children.降低儿童用药错误的危害风险。
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Personal health records for patients with chronic disease: a major opportunity.慢性病患者的个人健康记录:一个重大机遇。
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支持患者和家属在住院期间和出院后赋权并参与护理和康复的信息学研究议程。

An informatics research agenda to support patient and family empowerment and engagement in care and recovery during and after hospitalization.

机构信息

Brigham and Women's Hospital, Boston, MA, USA.

Department of Medicine, Harvard Medical School, Boston, MA, USA.

出版信息

J Am Med Inform Assoc. 2018 Feb 1;25(2):206-209. doi: 10.1093/jamia/ocx054.

DOI:10.1093/jamia/ocx054
PMID:28633483
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7647133/
Abstract

As part of an interdisciplinary acute care patient portal task force with members from 10 academic medical centers and professional organizations, we held a national workshop with 71 attendees representing over 30 health systems, professional organizations, and technology companies. Our consensus approach identified 7 key sociotechnical and evaluation research focus areas related to the consumption and capture of information from patients, care partners (eg, family, friends), and clinicians through portals in the acute and post-acute care settings. The 7 research areas were: (1) standards, (2) privacy and security, (3) user-centered design, (4) implementation, (5) data and content, (6) clinical decision support, and (7) measurement. Patient portals are not yet in routine use in the acute and post-acute setting, and research focused on the identified domains should increase the likelihood that they will deliver benefit, especially as there are differences between needs in acute and post-acute care compared to the ambulatory setting.

摘要

作为一个由来自 10 所学术医疗中心和专业组织的成员组成的跨学科急性护理患者门户工作组的一部分,我们与 71 名代表来自 30 多个卫生系统、专业组织和技术公司的人员举行了一次全国性研讨会。我们的共识方法确定了 7 个关键的社会技术和评估研究重点领域,这些领域涉及通过门户在急性和康复后护理环境中从患者、护理伙伴(如家庭、朋友)和临床医生那里获取信息。这 7 个研究领域是:(1)标准,(2)隐私和安全,(3)以用户为中心的设计,(4)实施,(5)数据和内容,(6)临床决策支持,以及(7)测量。患者门户尚未在急性和康复后环境中常规使用,针对所确定领域的研究应增加其带来益处的可能性,特别是因为与门诊环境相比,急性和康复后护理的需求存在差异。