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生命末期的痴呆症与家庭伴侣:关于沟通的符号互动主义视角

Dementia at the End of Life and Family Partners: A Symbolic Interactionist Perspective on Communication.

作者信息

Johnson Christopher, Kelch Jordan, Johnson Roxanna

机构信息

Department of Sociology, 601 University Drive, Texas State University, San Marcos, TX 78666-4684, USA.

Gerontologist and Dementia Specialist, Aging Consultants, Austin, TX 78733, USA.

出版信息

Behav Sci (Basel). 2017 Jul 9;7(3):42. doi: 10.3390/bs7030042.

DOI:10.3390/bs7030042
PMID:28698488
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5618050/
Abstract

People with dementia are not dying; they are experiencing changes in the brain. This paper utilizes a symbolic interaction theoretical perspective to outline communicative alternatives to polypharmacy. There is a growing interest in sociological interventions to untangle the "disordered discourses" associated with dementia. Such practices challenge common stigmas attached to dementia as an "ongoing funeral" or "death certificate." Changing the expectations, attitudes and communication patterns of family care partners can positively impact them and the person living with dementia at the end of life. This paper delineates multiple non-verbal communication interventions (e.g., the trip back in time, dementia citizenship and sensory engagement modalities) to explore techniques to engage persons with advanced dementia.

摘要

患有痴呆症的人并非正在死亡;他们正在经历大脑的变化。本文运用符号互动理论视角概述了针对多重用药的沟通替代方案。社会学干预措施越来越受到关注,旨在理清与痴呆症相关的“混乱话语”。此类做法挑战了附着于痴呆症的常见污名,即把它视为一场“正在进行的葬礼”或“死亡证明”。改变家庭护理伙伴的期望、态度和沟通模式能够对他们以及处于生命末期的痴呆症患者产生积极影响。本文阐述了多种非言语沟通干预措施(如时光回溯、痴呆症公民身份及感官参与方式),以探索与晚期痴呆症患者互动的技巧。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b828/5618050/0a6da4866c67/behavsci-07-00042-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b828/5618050/0a6da4866c67/behavsci-07-00042-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/b828/5618050/0a6da4866c67/behavsci-07-00042-g001.jpg

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本文引用的文献

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Healthcare decision-making: past present and future, in light of a diagnosis of dementia.鉴于痴呆症的诊断,医疗保健决策:过去、现在与未来。
Int J Palliat Nurs. 2017 Jan 2;23(1):4-11. doi: 10.12968/ijpn.2017.23.1.4.
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Potentially Inappropriate Medication in Community-Dwelling Primary Care Patients who were Screened Positive for Dementia.社区初级保健中痴呆筛查呈阳性的居家患者的潜在不适当用药情况。
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Physical Restraint and Antipsychotic Medication Use Among Nursing Home Residents With Dementia.养老院中痴呆患者的身体约束和抗精神病药物使用。
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General practitioners' perceptions of the stigma of dementia and the role of reciprocity.全科医生对痴呆症污名的认知及互惠的作用。
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Dementia, medication and transitions of care.痴呆症、药物治疗与护理过渡
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FITS into practice: translating research into practice in reducing the use of anti-psychotic medication for people with dementia living in care homes.融入实践:将研究成果应用于减少养老院痴呆症患者抗精神病药物的使用
Aging Ment Health. 2016 Jul;20(7):709-18. doi: 10.1080/13607863.2015.1063102. Epub 2015 Jul 13.
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Rationales that providers and family members cited for the use of antipsychotic medications in nursing home residents with dementia.护理机构中患有痴呆症的居民使用抗精神病药物时,提供者和家庭成员给出的理由。
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Systematic review investigating the reporting of comorbidities and medication in randomized controlled trials of people with dementia.系统评价研究痴呆患者随机对照试验中合并症和药物治疗的报告情况。
Age Ageing. 2014 Nov;43(6):868-72. doi: 10.1093/ageing/afu100. Epub 2014 Jul 19.