Centre for Palliative Care,St. Vincent's Hospital,Melbourne,Australia.
Australian Centre for Grief and Bereavement,Melbourne,Victoria,Australia; Association for Death Education and Counseling,Victoria,Australia.
Palliat Support Care. 2018 Aug;16(4):375-387. doi: 10.1017/S1478951517000451. Epub 2017 Jul 13.
ABSTRACTObjective:Provision of bereavement support is an essential component of palliative care service delivery. While bereavement support is integral to palliative care, it is typically insufficiently resourced, under-researched, and not systematically applied. Our aim was to develop bereavement standards to assist palliative care services to provide targeted support to family caregivers.
We employed a multiple-methods design for our study, which included: (1) a literature review, (2) a survey of palliative care service providers in Australia, (3) interviews with national (Australian) and international experts, (4) key stakeholder workshops, and (5) a modified Delphi-type survey.
A total of 10 standards were developed along with a pragmatic care pathway to assist palliative care services with implementation of the standards.
The bereavement standards and care pathway constitute a key initiative in the evolution of bereavement support provided by palliative care services. Future endeavors should refine and examine the impact of these standards. Additional research is required to enhance systematic approaches to quality bereavement care.
摘要目的：提供丧亲支持是姑息治疗服务提供的一个重要组成部分。虽然丧亲支持是姑息治疗的一个组成部分，但它的资源通常不足，研究不足，也没有系统地应用。我们的目的是制定丧亲标准，以帮助姑息治疗服务为家庭照顾者提供有针对性的支持。
我们采用了多种方法设计我们的研究，包括：（1）文献回顾，（2）对澳大利亚姑息治疗服务提供者的调查，（3）与国家（澳大利亚）和国际专家的访谈，（4）利益相关者研讨会，以及（5）改良型德尔菲式调查。
共制定了 10 项标准，并制定了一个实用的护理途径，以帮助姑息治疗服务实施这些标准。
丧亲标准和护理途径构成了姑息治疗服务提供丧亲支持演变的一个关键举措。未来的努力应该细化并检验这些标准的影响。需要进一步研究以加强对高质量丧亲护理的系统方法。
