Phillippi Julia C, Neal Jeremy L, Carlson Nicole S, Biel Frances M, Snowden Jonathan M, Tilden Ellen L
J Midwifery Womens Health. 2017 Sep;62(5):545-561. doi: 10.1111/jmwh.12640. Epub 2017 Aug 11.
Many organizations collect and make available perinatal data for research and quality improvement initiatives. Analysis of existing data and use of retrospective study design has many advantages for perinatal researchers. These advantages include large samples, inclusion of women from diverse groups, data reflective of actual clinical processes and outcomes, and decreased risk of direct maternal and fetal harm. We review 11 publicly available datasets relevant to perinatal research and quality improvement, detail the availability of interactive websites, and discuss strategies to locate additional datasets. While analysis of existing data has limitations, it may provide statistical power to study rare perinatal outcomes, support research applicable to diverse populations, and facilitate timely and ethical well-woman research immediately relevant to clinical care.
许多组织收集围产期数据并将其用于研究和质量改进计划。对现有数据进行分析并采用回顾性研究设计对围产期研究人员具有诸多优势。这些优势包括样本量大、纳入不同群体的女性、反映实际临床过程和结果的数据，以及降低对孕产妇和胎儿直接伤害的风险。我们回顾了11个与围产期研究和质量改进相关的公开可用数据集，详细介绍了交互式网站的可用性，并讨论了查找其他数据集的策略。虽然对现有数据的分析存在局限性，但它可能为研究罕见的围产期结局提供统计效力，支持适用于不同人群的研究，并促进与临床护理直接相关的及时且符合伦理的健康女性研究。
