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从芬兰癌症协会的角度看癌症患者及其家属的支持服务的发展。

Development of cancer support services for patients and their close ones from the Cancer Society of Finland's perspective.

机构信息

Department of Social Sciences, Faculty of Social Sciences and Business Studies, University of Eastern Finland, Kuopio, Finland.

Clinical Oncology, Department of Oncology, University of Turku, Turku, Finland.

出版信息

Int J Qual Stud Health Well-being. 2021 Dec;16(1):1915737. doi: 10.1080/17482631.2021.1915737.

Abstract

: This study examined what support cancer patients and their close ones need and how this support should be organized when developing cancer care pathways. The study focused on the opinions of professionals of the Cancer Society of Finland (CSF), who play a central role in presenting the third sector's perspective on care pathways.: Six semi-structured group interviews were carried out with counselling nurses (n = 12) and managers (n = 9) of the CSF during summer 2017. The results were analysed using content analysis.: Both patients and their close ones need more information, psychosocial support and financial counselling after diagnosis, during rehabilitation and follow-up, at relapse and during the palliative care phase; additionally, close ones require support after the patient's death. Participants emphasized close collaboration between public healthcare and the CSF to meet the needs of patients and their close ones.: Psychosocial support can-and should-be provided as part of the care pathway. This support can be provided by organizations in the third sector, such as the CSF, which have resources in this area.

摘要

本研究探讨了癌症患者及其家属在制定癌症护理路径时需要哪些支持,以及应如何组织这些支持。该研究侧重于芬兰癌症协会(CSF)专业人员的意见,他们在展示第三部门对护理路径的观点方面发挥着核心作用。 2017 年夏季,对 CSF 的咨询护士(n=12)和管理人员(n=9)进行了六次半结构化小组访谈。使用内容分析法分析结果。 患者及其家属在诊断后、康复和随访期间、复发期间和姑息治疗阶段都需要更多的信息、心理社会支持和财务咨询;此外,患者去世后,家属也需要支持。参与者强调公共卫生保健与 CSF 之间的密切合作,以满足患者及其家属的需求。 心理社会支持可以而且应该作为护理路径的一部分提供。这种支持可以由第三部门的组织提供,例如 CSF,该组织在这方面拥有资源。

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