McCartney Sara
Frontline Gastroenterol. 2011 Oct;2(4):237-241. doi: 10.1136/fg.2010.002741. Epub 2011 Jul 31.
The prevalence of inflammatory bowel disease (IBD) in childhood is increasing with a phenotype now established as one of complicated and extensive disease. Adolescent patients form a significant proportion of those requiring lifelong care. One of the most important steps in establishing a personal ability to effectively manage chronic disease is appropriate education, communication and a good relationship with healthcare professionals and a successful transition programme and subsequent transfer to adult care underpins this. It is vital to build trust and include parental input while transferring responsibility to the young person Although the literature confirms that the majority of paediatric gastroenterology units now have planned provision for transfer, the quality and appropriateness of these services have not been assessed or audited. This article discusses the drivers for establishing and improving transition services from both the patient's and healthcare provider's perspective. This heterogeneity of provision of healthcare for adolescents needs to be addressed and the experience of young people themselves is good evidence of this need. Barriers to optimal care need to be identified and managed and healthcare providers need to 'buy in' to establishing a flexible, patient focused achievable service for their patient population.
儿童炎症性肠病（IBD）的患病率正在上升，其表型现已被确认为复杂且广泛的疾病之一。青少年患者占需要终身护理人群的很大比例。建立个人有效管理慢性病能力的最重要步骤之一是进行适当的教育、沟通，并与医疗保健专业人员建立良好关系，而成功的过渡计划以及随后向成人护理的转移是这一过程的基础。在将责任转交给年轻人的同时，建立信任并纳入家长的意见至关重要。尽管文献证实，现在大多数儿科胃肠病科都已制定了转诊计划，但这些服务的质量和适宜性尚未得到评估或审核。本文从患者和医疗服务提供者的角度讨论了建立和改善过渡服务的驱动因素。青少年医疗保健服务提供的这种异质性需要得到解决，年轻人自身的经历就是这种需求的有力证据。需要识别和管理最佳护理的障碍，医疗服务提供者需要“接受”为其患者群体建立一个灵活、以患者为中心且可实现的服务。
