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2型糖尿病患者家庭成员的生活参与:对家庭健康认同和医疗真实性具有重要意义的六个相互关联的问题领域。

Involvement of family members in life with type 2 diabetes: Six interconnected problem domains of significance for family health identity and healthcare authenticity.

作者信息

Grabowski Dan, Andersen Tue Helms, Varming Annemarie, Ommundsen Christine, Willaing Ingrid

机构信息

Steno Diabetes Center Copenhagen, Gentofte, Denmark.

The Danish Diabetes Association, Copenhagen, Denmark.

出版信息

SAGE Open Med. 2017 Aug 17;5:2050312117728654. doi: 10.1177/2050312117728654. eCollection 2017.

Abstract

OBJECTIVES

Family involvement plays a key role in diabetes management. Problems and challenges related to type 2-diabetes often affect the whole family, and relatives are at increased risk of developing diabetes themselves. We highlight these issues in our objectives: (1) to uncover specific family problems associated with mutual involvement in life with type 2-diabetes and (2) to analytically look at ways of approaching these problems in healthcare settings.

METHODS

Qualitative data were gathered in participatory problem assessment workshops. The data were analysed in three rounds using radical hermeneutics.

RESULTS

Problems were categorized in six domains: knowledge, communication, support, everyday life, roles and worries. The final cross-analysis focusing on the link between family identity and healthcare authenticity provided information on how the six domains can be approached in healthcare settings.

CONCLUSION

The study generated important knowledge about problems associated with family involvement in life with type 2 diabetes and about how family involvement can be supported in healthcare practice.

摘要

目标

家庭参与在糖尿病管理中起着关键作用。与2型糖尿病相关的问题和挑战常常会影响整个家庭,亲属自身患糖尿病的风险也会增加。我们在目标中突出了这些问题:(1)揭示与共同参与2型糖尿病患者生活相关的特定家庭问题;(2)分析在医疗环境中解决这些问题的方法。

方法

在参与式问题评估研讨会上收集定性数据。使用激进诠释学对数据进行三轮分析。

结果

问题被归类为六个领域:知识、沟通、支持、日常生活、角色和担忧。最终聚焦于家庭身份与医疗真实性之间联系的交叉分析,提供了有关如何在医疗环境中处理这六个领域问题的信息。

结论

该研究产生了关于家庭参与2型糖尿病患者生活相关问题以及如何在医疗实践中支持家庭参与的重要知识。

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