1型糖尿病患者的人生经验：成人视角
Lessons Learned From a Life With Type 1 Diabetes: Adult Perspectives.
作者信息
Freeborn Donna, Dyches Tina, Roper Susanne Olsen
机构信息
College of Nursing, Brigham Young University, Provo, UT.
Department of Counseling Psychology and Special Education, Brigham Young University, Provo, UT.
出版信息
Diabetes Spectr. 2017 Aug;30(3):188-194. doi: 10.2337/ds16-0032.
Adults who have lived much of their life with type 1 diabetes have learned lessons that can benefit health care providers (HCPs), families, and young people who live with the condition. This study was undertaken to gain a better understanding of the challenges of growing up and living with type 1 diabetes from adults who have experienced those challenges and to recommend strategies for parents, caregivers, and HCPs who work with children or adolescents with type 1 diabetes. Thirty-five adults with type 1 diabetes participated in this qualitative study consisting of two in-depth interviews with each participant. Six themes emerged: ) It's not who you are. ) Don't let it limit you. ) Get involved in diabetes support groups. ) It's going to be OK. ) Teach them; don't scare them. ) Don't single kids out. Through hindsight and the more mature perspective of adulthood, study participants were able to share valuable insights that could inform the efforts of those who work with or care for younger people with type 1 diabetes.
一生中大部分时间都患有1型糖尿病的成年人所学到的经验教训，对医疗保健人员（HCPs）、家庭以及患有这种疾病的年轻人都有益处。本研究旨在更好地了解经历过这些挑战的成年人在患1型糖尿病的情况下成长和生活所面临的挑战，并为与患有1型糖尿病的儿童或青少年打交道的父母、照顾者和医疗保健人员推荐策略。35名1型糖尿病成年人参与了这项定性研究，每位参与者都接受了两次深入访谈。出现了六个主题：（1）这不是你的全部。（2）不要让它限制你。（3）参与糖尿病支持小组。（4）一切都会好起来的。（5）教导他们，不要吓唬他们。（6）不要孤立孩子。通过事后回顾以及成年人更成熟的视角，研究参与者能够分享宝贵的见解，这些见解可为那些与患有1型糖尿病的年轻人打交道或照顾他们的人的工作提供参考。
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