Birkeland Bente, Weimand Bente M, Ruud Torleif, Høie Magnhild M, Vederhus John-Kåre
Sørlandet Hospital HF, Addiction Department, Research Unit, Addiction Unit, Sørlandet Hospital HF, P.b. 416, 4604, Kristiansand, Norway.
Akershus University Hospital, Division Mental Health Services, Lørenskog, Norway.
Health Qual Life Outcomes. 2017 Aug 30;15(1):172. doi: 10.1186/s12955-017-0750-5.
This study explores (1) differences in socio-demographic, social/familial, and health variables and perceived quality of life (QoL) among partners of patients with somatic illness, mental illness, or substance use disorder (SUD); and (2) identifies factors associated with QoL.
Participants (N = 213) in this cross-sectional study were recruited from inpatient or outpatient services in five hospitals in Norway, 2013-2014. QoL was measured by the QoL-5, a generic five-item questionnaire. Differences between groups were examined using Chi-square for categorical variables and Kruskal-Wallis for contiuous variables. Multiple linear regression analyses were used to examine factors associated with QoL.
The mean QoL score was similar to that of a general population sample, and 13% of the sample had a markedly low QoL. Partners in the SUD group experienced worse socio-demographic conditions in terms of occupation and income, but QoL did not differ significantly among the three groups. In a regression model, perceived family cohesion was positively associated with QoL while psychological distress (Symptom Checklist-10) was negatively related to it. The model explained 56% of the variance in QoL.
When patients are ill, clinicians should consider the partners' QoL, and brief QoL tools can be used to identify those who are struggling most. Reduced QoL is associated with higher psychological distress and lower family cohesion. Treatment initiatives focusing on these themes may serve as preventive measures to help the most vulnerable families cope with their difficult life situation.
本研究探讨(1)躯体疾病、精神疾病或物质使用障碍(SUD)患者伴侣在社会人口统计学、社会/家庭及健康变量和感知生活质量(QoL)方面的差异;(2)确定与生活质量相关的因素。
本横断面研究的参与者(N = 213)于2013 - 2014年从挪威五家医院的住院或门诊服务中招募。生活质量通过QoL - 5进行测量,这是一份通用的五项问卷。使用卡方检验分析分类变量组间差异,使用Kruskal - Wallis检验分析连续变量组间差异。采用多元线性回归分析来检验与生活质量相关的因素。
生活质量平均得分与一般人群样本相似,13%的样本生活质量明显较低。SUD组的伴侣在职业和收入方面社会人口统计学状况较差,但三组之间生活质量无显著差异。在回归模型中,感知到的家庭凝聚力与生活质量呈正相关,而心理困扰(症状自评量表 - 10)与之呈负相关。该模型解释了生活质量变异的56%。
当患者患病时,临床医生应考虑伴侣的生活质量,简短的生活质量工具可用于识别那些最挣扎的人。生活质量降低与更高的心理困扰和更低的家庭凝聚力相关。关注这些主题的治疗措施可作为预防措施,帮助最脆弱的家庭应对艰难的生活状况。