Clinical Psychology, Institute of Neuroscience, Faculty of Medical Sciences, Newcastle University, Ridley Building, Newcastle Upon Tyne, NE1 7RU, UK.
National Autistic Society, Newcastle Upon Tyne, UK.
J Autism Dev Disord. 2017 Nov;47(11):3589-3599. doi: 10.1007/s10803-017-3269-z.
Family members are often the primary caregiver for autistic adults and this responsibility may impact on the carer's wellbeing and quality of life. 109 family members of autistic adults completed an online survey assessing their wellbeing relating to their caring role for their autistic relative. Family members who were supporting an autistic relative with co-occurring mental health difficulties and who they reported as unprepared for the future, self-reported higher levels of worry, depression, anxiety and stress, and poorer quality of life. These findings emphasise the importance of support for family members of autistic adults, whether through external services to support their relative or individual mental health support for the carer.
家庭成员通常是自闭症成年人的主要照顾者,这种责任可能会影响照顾者的幸福感和生活质量。109 名自闭症成年人的家庭成员完成了一项在线调查,评估了他们在照顾自闭症亲属方面的幸福感。那些正在照顾同时患有心理健康问题的自闭症亲属的家庭成员,以及那些他们认为对未来没有准备的家庭成员,自我报告的担忧、抑郁、焦虑和压力水平更高,生活质量更差。这些发现强调了为自闭症成年人的家庭成员提供支持的重要性,无论是通过外部服务来支持他们的亲属,还是为照顾者提供个人心理健康支持。