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聚焦社会因素:生命终末期过度激进治疗的系统层面影响。

Homing in on the Social: System-Level Influences on Overly Aggressive Treatments at the End of Life.

机构信息

Division of Hospital Medicine, University of California, San Francisco, San Francisco, California, USA.

Institute of Health Policy Studies, University of California San Francisco, San Francisco, California, USA.

出版信息

J Pain Symptom Manage. 2018 Feb;55(2):282-289.e1. doi: 10.1016/j.jpainsymman.2017.08.019. Epub 2017 Sep 1.

DOI:10.1016/j.jpainsymman.2017.08.019
PMID:28865869
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6329585/
Abstract

CONTEXT

The American Medical System is programmed to a default setting of aggressive care for the terminally ill. Institutional norms of decision making have been shown to promote high-intensity care, regardless of consistency with patient preferences. There are myriad factors at a system, clinician, surrogate, and patient level that drive the culture of overly aggressive treatments in American hospitals.

OBJECTIVE

The objective of this study was to understand physician perspective of the ways systems-level factors influence patient, physician, and surrogate perceptions and consequent behavior.

METHODS

Semi-structured in-depth qualitative interviews with 42 internal medicine physicians across three American academic medical centers were conducted. This qualitative study was exploratory in nature, intended to enhance conceptual understanding of underlying phenomena that drive physician attitudes and behavior.

RESULTS

The interviews revealed many factors that contributed to overly aggressive treatments at the end of life. Systemic factors, which describe underlying cultures (including institutional, professional, or community-based cultures), typical practices of care, or systemic defaults that drive patterns of care, manifested its influence both directly and through its impact on patient, surrogate, and physician behaviors and attitudes.

CONCLUSION

Institutional cultures, social norms, and systemic defaults influence both normative beliefs regarding standards of care and treatments plans that may not benefit seriously ill patients.

摘要

背景

美国医疗体系设定了默认的积极治疗绝症患者的方案。已证明机构决策规范会促进高强度治疗,而不考虑其是否符合患者的偏好。在系统、临床医生、代理人和患者层面上,有无数因素推动了美国医院过度积极治疗的文化。

目的

本研究的目的是了解医生对系统层面因素影响患者、医生和代理人的看法以及由此产生的行为的看法。

方法

在三家美国学术医疗中心对 42 名内科医生进行了半结构化深入定性访谈。这项定性研究具有探索性,旨在增强对驱动医生态度和行为的潜在现象的概念理解。

结果

访谈揭示了许多导致生命末期过度积极治疗的因素。系统性因素描述了潜在的文化(包括机构、专业或社区文化)、典型的护理实践或驱动护理模式的系统默认值,这些因素通过对患者、代理人和医生的行为和态度的影响,直接或间接地产生影响。

结论

机构文化、社会规范和系统默认值会影响关于护理标准和治疗计划的规范信念,这些信念可能对重病患者没有益处。

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本文引用的文献

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Navigating the Liminal State Between Life and Death: Clinician Moral Distress and Uncertainty Regarding New Life-Sustaining Technologies.跨越生死之间的临界状态:临床医生对新生命维持技术的道德困扰与不确定性
Am J Bioeth. 2017 Feb;17(2):22-25. doi: 10.1080/15265161.2016.1265172.
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Structural Racism and Supporting Black Lives - The Role of Health Professionals.结构性种族主义与支持黑人的生命——健康专业人员的作用
N Engl J Med. 2016 Dec 1;375(22):2113-2115. doi: 10.1056/NEJMp1609535. Epub 2016 Oct 12.
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Association of Increasing Use of Mechanical Ventilation Among Nursing Home Residents With Advanced Dementia and Intensive Care Unit Beds.养老院中患有晚期痴呆症的居民和 ICU 床位的机械通气使用量不断增加的关联。
JAMA Intern Med. 2016 Dec 1;176(12):1809-1816. doi: 10.1001/jamainternmed.2016.5964.
4
Effect of Palliative Care-Led Meetings for Families of Patients With Chronic Critical Illness: A Randomized Clinical Trial.以姑息治疗为主导的慢性危重病患者家属会议的效果:一项随机临床试验。
JAMA. 2016 Jul 5;316(1):51-62. doi: 10.1001/jama.2016.8474.
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Impact of Inpatient Palliative Care on Treatment Intensity for Patients with Serious Illness.住院姑息治疗对重症患者治疗强度的影响。
J Palliat Med. 2016 Sep;19(9):936-42. doi: 10.1089/jpm.2015.0240. Epub 2016 Jun 1.
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Caregiver strain and posttraumatic stress symptoms of informal caregivers of intensive care unit survivors.重症监护病房幸存者的非正式照料者的照料者压力及创伤后应激症状
Rehabil Psychol. 2016 May;61(2):173-8. doi: 10.1037/rep0000081.
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ICU versus Non-ICU Hospital Death: Family Member Complicated Grief, Posttraumatic Stress, and Depressive Symptoms.重症监护病房(ICU)与非ICU医院死亡情况:家庭成员的复杂性悲伤、创伤后应激及抑郁症状
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Family Perspectives on Aggressive Cancer Care Near the End of Life.家庭对临终前积极癌症治疗的看法。
JAMA. 2016 Jan 19;315(3):284-92. doi: 10.1001/jama.2015.18604.
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J Gen Intern Med. 2016 Jan;31(1):93-9. doi: 10.1007/s11606-015-3505-1. Epub 2015 Sep 21.
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JAMA Oncol. 2015 Sep;1(6):778-84. doi: 10.1001/jamaoncol.2015.2378.