Ring Nicola, Booth Hazel, Wilson Caroline, Hoskins Gaylor, Pinnock Hilary, Sheikh Aziz, Jepson Ruth
School of Health Sciences, University of Stirling, Stirling, Scotland, UK.
Nursing, Midwifery and Allied Health Profession Research Unit, University of Stirling, Stirling, Scotland, UK.
BMC Fam Pract. 2015 Oct 21;16:145. doi: 10.1186/s12875-015-0352-4.
Personal asthma action plans (PAAPs) have been guideline recommended for years, but consistently under-issued by health professionals and under-utilised by patients. Previous studies have investigated sub-optimal PAAP implementation but more insight is needed into barriers to their use from the perspective of professionals, patients and primary care teams.
A maximum variation sample of professional and patient participants were recruited from five demographically diverse general practices and another group of primary care professionals in one Scottish region. Interviews were digitally recorded and data thematically analysed using NVivo.
Twenty-nine semi-structured interviews were conducted (11 adults with asthma, seven general practitioners, ten practice nurses, one hospital respiratory nurse). Three over-arching themes emerged: 1) patients generally do not value PAAPs, 2) professionals do not fully value PAAPs and, 3) multiple barriers reduce the value of PAAPs in primary care. Six patients had a PAAP but these were outdated, not reflecting their needs and not used. Patients reported not wanting or needing PAAPs, yet identified circumstances when these could be useful. Fifteen professionals had selectively issued PAAPs with eight having reviewed one. Many professionals did not value PAAPs as they did not see patients using these and lacked awareness of times when patients could have benefited from one. Multi-level compounding barriers emerged. Individual barriers included poor patient awareness and professionals not reinforcing PAAP use. Organisational barriers included professionals having difficulty accessing PAAP templates and fragmented processes including patients not being asked to bring PAAPs to their asthma appointments.
Primary care PAAP implementation is in a vicious cycle. Professionals infrequently review/update PAAPs with patients; patients with out-dated PAAPs do not value or use these; professionals observing patients' lack of interest in PAAPs do not discuss these. Patients observing this do not refer to their plans and perceive them to be of little value in asthma self-management. Twenty-five years after PAAPs were first recommended, primary care practices are still not ready to support their implementation. Breaking this vicious cycle to create a healthcare context more conducive to PAAP implementation requires a whole systems approach with multi-faceted interventions addressing patient, professional and organisational barriers.
个人哮喘行动计划(PAAPs)多年来一直是指南推荐内容,但一直存在医疗专业人员开具不足以及患者使用不足的情况。以往研究调查了PAAPs实施效果欠佳的问题,但需要从专业人员、患者和基层医疗团队的角度更深入了解其使用障碍。
从五个不同人口统计学特征的全科诊所和苏格兰一个地区的另一组基层医疗专业人员中招募了最大差异样本的专业人员和患者参与者。访谈进行了数字录音,并使用NVivo进行主题数据分析。
共进行了29次半结构化访谈(11名成年哮喘患者、7名全科医生、10名执业护士、1名医院呼吸科护士)。出现了三个总体主题:1)患者普遍不重视PAAPs;2)专业人员没有充分重视PAAPs;3)多种障碍降低了PAAPs在基层医疗中的价值。6名患者有PAAP,但这些计划过时了,没有反映他们的需求,也没有被使用。患者表示不想要或不需要PAAPs,但也指出了这些计划可能有用的情况。15名专业人员有选择地开具了PAAPs,其中8人对一份计划进行了审查。许多专业人员不重视PAAPs,因为他们没有看到患者使用这些计划,并且对患者本可从中受益的时机缺乏认识。出现了多层次的复合障碍。个体障碍包括患者意识淡薄以及专业人员没有强化PAAPs的使用。组织障碍包括专业人员获取PAAP模板困难以及流程碎片化,包括在哮喘就诊时没有要求患者携带PAAPs。
基层医疗中PAAPs的实施处于恶性循环。专业人员很少与患者审查/更新PAAPs;PAAPs过时的患者不重视或不使用这些计划;专业人员观察到患者对PAAPs缺乏兴趣,就不会讨论这些计划。患者看到这种情况后,就不会参考他们的计划,并且认为这些计划在哮喘自我管理中价值不大。在PAAPs首次被推荐25年后,基层医疗实践仍未准备好支持其实施。打破这种恶性循环,营造更有利于PAAPs实施的医疗环境,需要采用全系统方法,通过多方面干预来解决患者、专业人员和组织方面的障碍。