乌干达感染艾滋病毒和艾滋病儿童照料者的经历：一项定性研究
The experiences of caregivers of children living with HIV and AIDS in Uganda: a qualitative study.
作者信息
Osafo Joseph, Knizek Birthe Loa, Mugisha James, Kinyanda Eugene
机构信息
Department of Psychology, Centre for Suicide and Violence Research , School of Social Sciences, University of Ghana, P. O. Box LG84, Legon, Ghana.
Department of Mental Health, Faculty of Medicine and Health Science, Norwegian University of Science and Technology, Trondheim, Norway.
出版信息
Global Health. 2017 Sep 12;13(1):72. doi: 10.1186/s12992-017-0294-9.
BACKGROUND
Home-based care for HIV patients is popular in contexts severely affected by the epidemic and exacts a heavy toll on caregivers. This study aimed at understanding the experiences of caregivers and their survival strategies.
METHODS
A total of 18 caregivers (3 males and 15 females) were interviewed using a semi-structured interview guide, and thematic analysis was used to analyse the data.
RESULTS
Analysis suggests that the caregivers are burdened with insecure provisions for food and difficulties in accessing health care. They however survived these strains through managing their relationships, sharing burden with care-recipients, social networks and instrumental spirituality. These findings are discussed under two major themes: 1). Labour of caregiving and 2). Survivalism.
CONCLUSIONS
Home-based care presents huge opportunities for community response to the HIV/AIDS epidemic in African settings. It is however burdensome and thus should not be left for families alone to shoulder. There is therefore an urgent need for protecting home-based care for HIV children in Uganda. Implications for improving and strengthening social interventions in home-based care of HIV/AIDS in the Ugandan context are addressed.
背景
在受艾滋病疫情严重影响的地区，为艾滋病毒患者提供居家护理很普遍，这给护理人员带来了沉重负担。本研究旨在了解护理人员的经历及其生存策略。
方法
使用半结构化访谈指南对18名护理人员（3名男性和15名女性）进行了访谈，并采用主题分析法对数据进行分析。
结果
分析表明，护理人员面临着食品供应不安全和获得医疗保健困难的问题。然而，他们通过管理人际关系、与受护理者分担负担、利用社会网络和借助工具性精神寄托来应对这些压力。这些发现将在两个主要主题下进行讨论：1）. 护理工作；2）. 生存主义。
结论
居家护理为非洲地区社区应对艾滋病毒/艾滋病疫情提供了巨大机遇。然而，这是一项繁重的任务，因此不应仅由家庭独自承担。因此，乌干达迫切需要保护为感染艾滋病毒儿童提供的居家护理。文中探讨了在乌干达背景下改善和加强对艾滋病毒/艾滋病居家护理的社会干预措施的意义。
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