Department of Medicine, Boston Children's Hospital, Boston, Massachusetts, USA; Department of Pediatric Oncology, Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, Massachusetts, USA; Harvard Medical School, Boston, Massachusetts, USA; Office of Ethics, Boston Children's Hospital, Boston, Massachusetts, USA; Center for Bioethics, Harvard Medical School, Boston, Massachusetts, USA; Division of Population Sciences, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.
Department of Medicine, Boston Children's Hospital, Boston, Massachusetts, USA; Department of Pediatric Oncology, Dana-Farber/Boston Children's Cancer and Blood Disorders Center, Boston, Massachusetts, USA; Harvard Medical School, Boston, Massachusetts, USA; Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, Boston, Massachusetts, USA.
J Pain Symptom Manage. 2018 Jan;55(1):164-171. doi: 10.1016/j.jpainsymman.2017.09.006. Epub 2017 Sep 13.
Care for children as they near the end of life is difficult and very complex. More difficult still are the decisions regarding what interventions are and are not indicated during these trying times. Occasionally, families of children who are nearing the end of life disagree with the assessment of the medical team regarding these interventions. In rare cases, the medical team can be moved to enact a do not attempt resuscitation order against the wishes of the patient's parents. This article presents one such illustrative case and discusses the ethical issues relevant to such challenging clinical scenarios. The authors posit that such a unilateral do not attempt resuscitation order is only appropriate in very limited circumstances in pediatric care. Instead, focus should be placed on open discussion between parents and members of the clinical team, shared decision making, and maintenance of the clinician-parent relationship while simultaneously supporting members of the clinical team who express discomfort with parental decisions. The authors propose an alternative framework for approaching such a conflict based on clinician-parent collaboration and open communication.
关爱生命末期的儿童是困难且非常复杂的。在这些艰难时刻,做出哪些干预是合适的,哪些是不合适的决定更加困难。偶尔,生命末期儿童的家属会不同意医疗团队对这些干预措施的评估。在极少数情况下,医疗团队可以违背患者父母的意愿下达不进行心肺复苏的命令。本文介绍了这样一个说明性案例,并讨论了与这些具有挑战性的临床情况相关的伦理问题。作者认为,在儿科护理中,只有在非常有限的情况下,才适合下达这样单方面的不进行心肺复苏的命令。相反,应该关注父母和临床团队成员之间的公开讨论、共同决策,并维持临床医生和家长之间的关系,同时支持对父母决策感到不适的临床团队成员。作者提出了一种替代框架,基于临床医生-家长合作和开放沟通,来处理这种冲突。