Guan Yue, Maloney Kristin A, Roter Debra L, Pollin Toni I
Division of Endocrinology, Diabetes & Nutrition, Program for Personalized and Genomic Medicine, Department of Medicine, University of Maryland School of Medicine, 685 W. Baltimore St., MSTF 3-14D, Baltimore, MD, 21201, USA.
Department of Health, Behavior and Society, Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, USA.
J Genet Couns. 2018 Jun;27(3):608-615. doi: 10.1007/s10897-017-0155-y. Epub 2017 Sep 26.
The purpose of this study was to assess the informational content, readability, suitability and comprehensibility of websites offering educational information about monogenic diabetes available to patients. The top 20 results from 15 queries in four search engines were screened. Content analysis was performed by two independent coders. Readability was determined using Flesch-Kincaid grade level (FKGL) and Simplified Measure of Goobledygook (SMOG). The Comprehensibility Assessment of Materials (SAM + CAM) scale was utilized to evaluate website suitability and comprehensibility. Only 2% (N = 29) of 1200 screened websites met inclusion criteria. Content analysis showed that 16 websites presented information on at least the most common forms of MODY (1, 2 and 3), four addressed the utility of genetic counseling, and none included support resources for patients. All websites exceeded the consensus readability level (6th grade) as assessed by FKGL (10.1 grade) and SMOG (12.8 ± 1.5 grades). Although the majority (N = 20) of websites had an overall "adequate" to "superior" quality score (SAM + CAM score > = 40%), more than one-third scored "not suitable" in categories of content, literacy demand, graphics, and learning motivation. The online educational resources for monogenic diabetes have a high readability level and require improvement in ease of use and comprehensibility for patients with diabetes.
本研究的目的是评估向患者提供单基因糖尿病教育信息的网站的信息内容、可读性、适用性和可理解性。对四个搜索引擎中15个查询的前20个结果进行了筛选。由两名独立编码员进行内容分析。使用弗莱什-金凯德年级水平(FKGL)和简化的官样文章测量法(SMOG)确定可读性。利用材料可理解性评估(SAM + CAM)量表评估网站的适用性和可理解性。在1200个筛选的网站中,只有2%(N = 29)符合纳入标准。内容分析表明,16个网站至少介绍了最常见的青少年发病的成年型糖尿病(MODY,1、2和3型)的信息,4个网站提到了遗传咨询的作用,没有一个网站包含患者支持资源。所有网站的可读性均超过了共识水平(6年级),FKGL评估为10.1年级,SMOG评估为12.8 ± 1.5年级。尽管大多数网站(N = 20)的总体质量得分“足够”到“优秀”(SAM + CAM得分 >= 40%),但超过三分之一的网站在内容、识字要求、图形和学习动机类别中得分“不适用”。单基因糖尿病的在线教育资源可读性较高,但在易用性和糖尿病患者的可理解性方面需要改进。