Liang Wayne H, Madan-Swain Avi, Cronin Robert M, Jackson Gretchen P
University of Alabama at Birmingham, Birmingham, Alabama.
Vanderbilt University Medical Center, Nashville, Tennessee.
AMIA Annu Symp Proc. 2018 Dec 5;2018:730-739. eCollection 2018.
Patient and caregiver engagement in making decisions and taking actions to promote health are critically important for improving outcomes, enhancing healthcare experience satisfaction, and reducing costs. Patients and caregivers have a wealth of expertise in illness self-management and can aid others in attaining high levels of activation through peer-to-peer social support. We describe the development of a technology-supported, family engagement consultation service at Children's of Alabama that integrates parent volunteers as front-line, peer-to-peer support consultants with a multidisciplinary team of informatics professionals in the pediatric hospital setting. This service was adapted from an existing engagement consultation service with a traditional medical consultation model at Vanderbilt Children's Hospital. The unique features of the new model are articulated, along with plans for a shared knowledge database of consumer health resources to meet needs. The layperson peer-to-peer design is highly innovative and relevant as healthcare transitions towards increasingly participatory and personalized medicine.
患者及其照护者参与决策并采取促进健康的行动，对于改善治疗效果、提高医疗体验满意度以及降低成本至关重要。患者及其照护者在疾病自我管理方面拥有丰富的专业知识，并且可以通过同伴间的社会支持帮助他人实现高度的积极性。我们描述了阿拉巴马州儿童医院一项技术支持的家庭参与咨询服务的发展情况，该服务将家长志愿者作为一线同伴支持顾问，与儿科医院环境中的多学科信息学专业团队相结合。这项服务是从范德比尔特儿童医院现有的采用传统医疗咨询模式的参与咨询服务改编而来的。阐述了新模式的独特特征，以及建立一个共享的消费者健康资源知识库以满足需求的计划。随着医疗保健向越来越多的参与式和个性化医学转变，外行人同伴间的设计极具创新性且具有相关性。
