Lee Yi-Chen, Yang Hao-Jan, Lee Wan-Ting, Teng Ming-Jen
a School of Occupational Therapy, College of Medicine , National Taiwan University , Taipei City , Taiwan (R.O.C).
b School of Occupational Therapy , Chung Shan Medical University , Taichung , Taiwan.
Disabil Rehabil. 2019 Feb;41(3):265-275. doi: 10.1080/09638288.2017.1391338. Epub 2017 Oct 23.
This meta-analysis was conducted to assess differences in a child's health-related quality of life (HRQOL) as reported by the child and their parents using the Pediatric Quality of Life Inventory, and the effects in both children with attention deficit hyperactivity disorder (ADHD) and those with typical development.
Eight studies encompassing 16 independent groups met the inclusion criteria and were combined and compared in this meta-analysis. Fixed effect analysis was applied in the subgroup analysis to compare differences between children with ADHD and those with typical development.
Small to moderate magnitudes of parent-child discrepancies were found in the ratings of the children's HRQOL both in those with ADHD (g = -0.23 [-0.33, -0.13], p < 0.001, physical HRQOL; g = -0.60 [-0.71, -0.48], p < 0.001, psychosocial HRQOL) and in those with typical development (g = -0.27 [-0.31, -0.23], p < 0.001, physical HRQOL; g = -0.29 [-0.33, -0.25], p < 0.001, psychosocial HRQOL) except for emotional HRQOL in children with typical development (g = 0.003 [-0.04, 0.04], p = 0.90). The parent-child discrepancy in rating the child's psychosocial HRQOL was significantly larger in the children with ADHD than in those with typical development.
This meta-analysis suggests that a child's HRQOL may be assessed in children and adolescents with ADHD both by parent proxy- and child self-reports. Parent-child discrepancies, especially in psychosocial HRQOL, and sources of discrepancy need to be addressed when assessing the child's HRQOL and planning interventions in children with ADHD. Implications for Rehabilitation Parents reported a significantly worse health-related quality of life of their children than both the children with attention deficit hyperactivity disorder and those with typical development. A child's health-related quality of life needs to be assessed both by parent proxy and self-reports of the children. Children with attention deficit hyperactivity disorder and those with typical development differed significantly in parent-child discrepancy in child's psychosocial health-related quality of life, but not in physical health-related quality of life. Parent-child discrepancies, especially in psychosocial health-related quality of life, and sources of discrepancy (e.g., child, parent or family characteristics) need to be addressed when assessing the child's health-related quality of life and planning interventions in children with attention deficit hyperactivity disorder.
本荟萃分析旨在评估使用儿童生活质量量表，由儿童及其父母报告的儿童健康相关生活质量（HRQOL）的差异，以及对注意力缺陷多动障碍（ADHD）儿童和发育正常儿童的影响。
八项研究共包含16个独立组符合纳入标准，在本荟萃分析中进行合并和比较。亚组分析采用固定效应分析，以比较ADHD儿童与发育正常儿童之间的差异。
在ADHD儿童（身体HRQOL：g = -0.23 [-0.33, -0.13]，p < 0.001；心理社会HRQOL：g = -0.60 [-0.71, -0.48]，p < 0.001）和发育正常儿童（身体HRQOL：g = -0.27 [-0.31, -0.23]，p < 0.001；心理社会HRQOL：g = -0.29 [-0.33, -0.25]，p < 0.001）中，除发育正常儿童的情绪HRQOL（g = 0.003 [-0.04, 0.04]，p = 0.90）外，儿童HRQOL评分中亲子差异为小到中等程度。ADHD儿童在对其心理社会HRQOL评分中的亲子差异显著大于发育正常儿童。
本荟萃分析表明，ADHD儿童和青少年的HRQOL可通过家长代理报告和儿童自我报告进行评估。在评估ADHD儿童的HRQOL并规划干预措施时，需要解决亲子差异问题，尤其是心理社会HRQOL方面的差异及其来源。康复启示家长报告其子女的健康相关生活质量明显比注意力缺陷多动障碍儿童和发育正常儿童更差。儿童的健康相关生活质量需要通过家长代理报告和儿童自我报告进行评估。注意力缺陷多动障碍儿童和发育正常儿童在儿童心理社会健康相关生活质量的亲子差异方面存在显著差异，但在身体健康相关生活质量方面不存在显著差异。在评估ADHD儿童的健康相关生活质量并规划干预措施时，需要解决亲子差异问题，尤其是心理社会健康相关生活质量方面的差异及其来源（如儿童、家长或家庭特征）。
