Huber Maria, Havas Clara
Department of Otorhinolaryngology, Head and Neck Surgery, University Hospital Salzburg, Paracelsus Medical University, Salzburg, Austria.
Department of Pediatrics, University Hospital Salzburg, Paracelsus Medical University, Salzburg, Austria.
Front Psychol. 2019 Sep 12;10:2085. doi: 10.3389/fpsyg.2019.02085. eCollection 2019.
Cochlear implants (CI) support the development of oral language in hearing-impaired children. However, even with CI, speech recognition in noise (SRiN) is limited. This raised the question, whether these restrictions are related to the quality of life (QoL) of children and adolescents with CI and how SRiN and QoL are related to each other. As a result of a systematic literature research only three studies were found, indicating positive moderating effects between SRiN and QoL of young CI users. Thirty studies addressed the quality of life of children and adolescents with CI. Following the criteria of the World Health Organization (WHO) for pediatric health related quality of life HRQoL (1994) only a minority used validated child centered and age appropriate QoL instruments. Moreover, despite the consensus that usually children and adolescents are the most prominent informants of their own QoL (parent-reports complement the information of the children) only a minority of investigators used self-reports. Restricted SRiN may be a burden for the QoL of children and adolescents with CI. Up to now the CI community does not seem to have focused on a possible impairment of QoL in young CI users. Further studies addressing this topic are urgently needed, which is also relevant for parents, clinicians, therapists, teachers, and policy makers. Additionally investigators should use valid pediatric QoL instruments. Most of the young CI users are able to inform about their quality of life themselves.
人工耳蜗（CI）有助于听力受损儿童的口语发展。然而，即便使用了人工耳蜗，噪声环境下的语音识别（SRiN）能力依然有限。这就引发了一个问题，即这些限制是否与人工耳蜗植入儿童及青少年的生活质量（QoL）相关，以及SRiN和QoL之间是如何相互关联的。经过系统的文献研究，仅发现三项研究表明年轻人工耳蜗使用者的SRiN和QoL之间存在积极的调节作用。有三十项研究探讨了人工耳蜗植入儿童及青少年的生活质量。按照世界卫生组织（WHO）1994年关于儿童健康相关生活质量（HRQoL）的标准，只有少数研究使用了经过验证的、以儿童为中心且适合其年龄的生活质量评估工具。此外，尽管人们普遍认为儿童和青少年通常是自身生活质量的最佳信息提供者（家长报告可补充儿童提供的信息），但只有少数研究者采用了自我报告的方式。受限的SRiN可能会成为人工耳蜗植入儿童及青少年生活质量的负担。到目前为止，人工耳蜗领域似乎尚未关注年轻人工耳蜗使用者生活质量可能受到的损害。迫切需要开展更多针对这一主题的研究，这对家长、临床医生、治疗师、教师和政策制定者也具有重要意义。此外，研究者应使用有效的儿童生活质量评估工具。大多数年轻人工耳蜗使用者能够自行说明他们的生活质量。
