van Overveld L F J, Takes R P, Turan A S, Braspenning J C C, Smeele L E, Merkx M A W, Hermens R P M G
Scientific Center for Quality of Healthcare, Radboud Institute for Health Sciences, Radboud University Medical Centre, Nijmegen, the Netherlands.
Department of Otolaryngology, Head and Neck surgery, Radboud Institute for Health Sciences, Radboud University Medical Centre, Nijmegen, the Netherlands.
Clin Otolaryngol. 2018 Apr;43(2):553-561. doi: 10.1111/coa.13021. Epub 2017 Dec 11.
Incorporation of patients' perspectives in daily practice is necessary to adapt care to users' needs. However, information on patients' needs and preferences for integrated care is lacking. The aim was to explore these needs and preferences, taking patients with head and neck cancer (HNC) as example, to adapt current integrated care to be more patient-centred.
Semi-structured interviews were held with current and former patients and chairmen of patient associations. Relevant needs and preferences were identified and categorised using the eight-dimension Picker model of patient-centred care.
Integrated HNC in the Netherlands.
Patients with HNC and chairmen of two Dutch HNC patient associations.
Patients' needs and preferences of integrated HNC care categorised according the Picker model.
A total of 34 themes of needs and preferences were identified, by 14 patients with HNC or their delegates, using the Picker dimensions. Themes often emerged were as follows: personalisation of health care regarding patient values; clear insight into the healthcare process at organisational level; use of personalised communication, education and information that meets patients' requirements; adequate involvement of allied health professionals for physical support; more attention to the impact of HNC and its treatment; adequate involvement of family and friends; adequate general practitioner involvement in the aftercare; and waiting time reduction.
Monitoring the identified themes in integrated HNC care, fitting in the Picker model, will enable us to respond better to the needs and preferences of patients, and patient-centred care in oncological care can be enhanced.
将患者的观点纳入日常实践对于使护理适应用户需求是必要的。然而，关于患者对综合护理的需求和偏好的信息却很缺乏。本研究旨在以头颈癌（HNC）患者为例，探索这些需求和偏好，以使当前的综合护理更以患者为中心。
对现患和曾患患者以及患者协会主席进行了半结构式访谈。使用以患者为中心护理的八维度Picker模型确定并分类相关需求和偏好。
荷兰的头颈癌综合护理。
头颈癌患者以及两个荷兰头颈癌患者协会的主席。
根据Picker模型对头颈癌综合护理患者的需求和偏好进行分类。
14名头颈癌患者或其代表使用Picker维度共确定了34个需求和偏好主题。经常出现的主题如下：根据患者价值观实现医疗保健的个性化；在组织层面清晰了解医疗过程；使用符合患者要求的个性化沟通、教育和信息；让专职医疗人员充分参与提供身体支持；更多关注头颈癌及其治疗的影响；让家人和朋友充分参与；让全科医生充分参与后续护理；以及减少等待时间。
对头颈癌综合护理中确定的、符合Picker模型的主题进行监测，将使我们能够更好地回应患者的需求和偏好，并增强肿瘤护理中的以患者为中心的护理。
