Department of Pediatrics, Kasturba Medical College, Manipal University, Mangaluru, Karnataka, India.
Department of Community Medicine, Kasturba Medical College, Manipal University, Mangaluru, Karnataka, India.
Qual Life Res. 2018 Apr;27(4):871-877. doi: 10.1007/s11136-017-1726-y. Epub 2017 Oct 26.
To assess the impact of care at foster homes on the health-related quality of life (HRQOL) of children living with HIV (CLHIV), attending a referral ART Centre, and to compare their HRQOL with children living in their own homes.
A cross-sectional study was conducted in 144 CLHIV between 5 and 18 years of age, attending a referral ART Centre in South India to assess their HRQOL using the standard PedsQL™ 4.0 questionnaire. Data were then analysed to compare the HRQOL of children living in foster homes to those children living in their own homes. The child report and the parent proxy-report on the child's HRQOL were also compared to see for any differences in their perspectives.
56.25% CLHIV were brought up in different foster homes. In the child's self-report, the mean HRQOL was higher for children living in foster homes [physical score (76.54 ± 12.40), psychosocial score (71.41 ± 12.40) and total score (73.20 ± 11.13)] when compared to children living in their own homes [physical score (75.09 ± 14.76), psychosocial score (70.60 ± 13.48) and total score (72.17 ± 12.00)]. There was no statistically significant difference in the HRQOL between these two groups (p > 0.05). In the parent proxy-report also, there was no statistically significant difference in the HRQOL in all the three scores. The child self-report depicted a significantly higher HRQOL in all the domains compared to the parent proxy-report (p < 0.05).
HRQOL of children living in foster homes is at par with the quality of life enjoyed by children living in their own homes. Foster care manages to provide a reasonable HRQOL in CLHIV, and has become an inseparable component of quality health care delivery for these children.
评估寄养家庭对接受转介抗逆转录病毒治疗（ART）中心治疗的艾滋病毒携带儿童（CLHIV）的健康相关生活质量（HRQOL）的影响，并将其与在自己家中生活的儿童进行比较。
在印度南部的一家转介抗逆转录病毒治疗中心，对 144 名 5 至 18 岁的 CLHIV 进行了一项横断面研究，使用标准的 PedsQL™ 4.0 问卷评估他们的 HRQOL。然后分析数据，比较寄养家庭和自己家中生活的儿童的 HRQOL。还比较了儿童报告和父母对儿童 HRQOL 的代理报告，以了解他们观点的差异。
56.25%的 CLHIV 在不同的寄养家庭中长大。在儿童自我报告中，寄养家庭中儿童的 HRQOL 更高[身体评分（76.54±12.40）、心理社会评分（71.41±12.40）和总分（73.20±11.13）]，而自己家中儿童的 HRQOL 较低[身体评分（75.09±14.76）、心理社会评分（70.60±13.48）和总分（72.17±12.00）]。这两组之间的 HRQOL 没有统计学上的显著差异（p>0.05）。在父母代理报告中，三个评分的 HRQOL 也没有统计学上的显著差异。儿童自我报告显示，所有领域的 HRQOL 都明显高于父母代理报告（p<0.05）。
寄养家庭中儿童的 HRQOL 与自己家中儿童的生活质量相当。寄养照顾设法为 CLHIV 提供了合理的 HRQOL，并且已经成为这些儿童提供优质医疗保健服务不可或缺的一部分。
