College of Nursing, All India Institute of Medical Sciences, Ansari Nagar, New Delhi, India.
Indian J Pediatr. 2010 Jun;77(6):633-7. doi: 10.1007/s12098-010-0087-0. Epub 2010 Jun 8.
To assess the quality of life (QOL) and the psychosocial problems of HIV infected children.
The present study was a comparative, cross-sectional survey conducted in the clinic of a tertiary care hospital in north India from July-December 2007. Children suffering from cystic fibrosis (CF) were chosen as a comparison group. Children (3) 6 yr of age with HIV infection or Cystic Fibrosis, with no acute illness at the time of survey were included in the study. Quality of life of the enrolled children was assessed by using the Pediatric Quality of Life Inventory (PedsQL). Pediatric Symptom Checklist (PSC) was used for assessing the psychosocial problems in the enrolled children.
Forty one HIV infected and 30 children with cystic fibrosis were enrolled. According to child self -report in the PedsQL 4.0, the difference of perceived physical health status between the two study groups was statistically significant (p=0.04), with HIV infected children demonstrating a better QOL in this domain. A significantly greater number of children with cystic fibrosis (8/30 or 26.67%) suffered from psychosocial problems as compared to HIV children (3/41 or 7.32%) [p=0.026].
The quality of life and psychosocial functioning is reasonably good in children with HIV infection. Thus, we should strive to maintain and optimize the overall quality of life of these children so that they can have a productive and meaningful future.
评估 HIV 感染儿童的生活质量(QOL)和心理社会问题。
本研究为 2007 年 7 月至 12 月在印度北部一家三级护理医院诊所进行的一项比较性、横断面调查。选择囊性纤维化(CF)患儿作为对照组。研究纳入了患有 HIV 感染或囊性纤维化且在调查时无急性疾病的年龄为 3 至 6 岁的儿童。采用儿童生活质量量表(PedsQL)评估纳入儿童的生活质量。采用儿科症状清单(PSC)评估纳入儿童的心理社会问题。
共纳入 41 例 HIV 感染儿童和 30 例囊性纤维化儿童。根据儿童自身报告的 PedsQL 4.0,两组研究对象感知的身体健康状况差异具有统计学意义(p=0.04),HIV 感染儿童在该领域的生活质量较好。患有心理社会问题的囊性纤维化儿童明显多于 HIV 感染儿童(8/30 或 26.67%比 3/41 或 7.32%)[p=0.026]。
HIV 感染儿童的生活质量和心理社会功能良好。因此,我们应努力维持和优化这些儿童的整体生活质量,使他们能够拥有富有成效和有意义的未来。