O'Brien Rosaleen, Wyke Sally, Watt Graham G C M, Guthrie Bruce, Mercer Stewart W
General Practice and Primary Care, Institute of Health and Wellbeing, University of Glasgow, Glasgow, UK.
College of Social Science, Institute of Health and Wellbeing, University of Glasgow, Glasgow, UK.
J Comorb. 2014 May 28;4:1-10. doi: 10.15256/joc.2014.4.32. eCollection 2014.
Multimorbidity is common in patients living in areas of high socioeconomic deprivation and is associated with poor quality of life, but the reasons behind this are not clear. Exploring the 'everyday life work' of patients may reveal important barriers to self-management and wellbeing.
To investigate the relationship between the management of multimorbidity and 'everyday life work' in patients living in areas of high socioeconomic deprivation in Scotland, as part of a programme of work on multimorbidity and deprivation.
Qualitative study: individual semi-structured interviews of 14 patients (8 women and 6 men) living in deprived areas with multimorbidity, exploring how they manage. Analysis was continuous and iterative. We report the findings in relation to everyday life work.
The in-depth analysis revealed four key themes: (i) the symbolic significance of everyday life work to evidence the work of being 'normal'; (ii) the usefulness of everyday life work in managing symptoms; (iii) the impact that mental health problems had on everyday life work; and (iv) issues around accepting help for everyday life tasks. Overall, most struggled with the amount of work required to establish a sense of normalcy in their everyday lives, especially in those with mental-physical multimorbidity.
Everyday life work is an important component of self-management in patients with multimorbidity in deprived areas, and is commonly impaired, especially in those with mental health problems. Interventions to improve self-management support for patients living with multimorbidity may benefit from an understanding of the role of everyday life work. Journal of Comorbidity 2014;4:1-10.
多重疾病在社会经济高度贫困地区的患者中很常见，且与生活质量差相关，但背后的原因尚不清楚。探索患者的“日常生活工作”可能会揭示自我管理和幸福的重要障碍。
作为一项关于多重疾病和贫困的工作计划的一部分，调查苏格兰社会经济高度贫困地区患者的多重疾病管理与“日常生活工作”之间的关系。
定性研究：对14名患有多重疾病的贫困地区患者（8名女性和6名男性）进行个体半结构式访谈，探讨他们如何进行管理。分析是持续且迭代的。我们报告与日常生活工作相关的研究结果。
深入分析揭示了四个关键主题：（i）日常生活工作对证明“正常”状态的象征意义；（ii）日常生活工作在管理症状方面的作用；（iii）心理健康问题对日常生活工作的影响；以及（iv）在接受日常生活任务帮助方面的问题。总体而言，大多数人在为在日常生活中建立正常感所需的工作量上挣扎，尤其是那些患有身心多重疾病的人。
日常生活工作是贫困地区多重疾病患者自我管理的重要组成部分，且通常受到损害，尤其是那些有心理健康问题的患者。改善对多重疾病患者自我管理支持的干预措施可能会受益于对日常生活工作作用的理解。《共病杂志》2014年；4：1 - 10。
