原始基因组数据：存储、访问和共享。
Raw Genomic Data: Storage, Access, and Sharing.
机构信息
Center for Biomedical Ethics and Law, Department of Public Health and Primary Care, University of Leuven, Belgium.
Center for Biomedical Ethics and Law, Department of Public Health and Primary Care, University of Leuven, Belgium.
出版信息
Trends Genet. 2018 Jan;34(1):8-10. doi: 10.1016/j.tig.2017.10.004. Epub 2017 Nov 10.
PMID:29132689
Abstract
Patients are increasingly being encouraged and supported to access and control their own medical and genomic data. We argue that well-established and transparent raw genomic data retention and returning policies are imperative to enable patients to practice their rights to access and control raw data.
摘要
越来越多的患者被鼓励和支持访问和控制自己的医疗和基因组数据。我们认为，建立健全和透明的原始基因组数据保留和返还政策对于使患者能够行使其访问和控制原始数据的权利是必要的。
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