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社区层面收集感染 HIV 母亲的儿童数据:研究人员角色的界限。

Community Data Collection with Children of Mothers Living with HIV: Boundaries of the Researcher Role.

机构信息

Georgia State University, Atlanta, GA, USA.

出版信息

Am J Community Psychol. 2017 Dec;60(3-4):368-374. doi: 10.1002/ajcp.12193. Epub 2017 Nov 20.

DOI:10.1002/ajcp.12193
PMID:29154398
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5729107/
Abstract

The TRACK-II program is a multi-site, community-based randomized controlled trial evaluating an intervention to assist mothers living with HIV (MLH) in disclosing their HIV status to their young children. Many participants-both mothers and children-reported significant depression and/or suicidal ideation, a phenomenon that presented ethical challenges. This article focuses on participants at one site (Atlanta). Through the vignette of "Jordan," we describe ethical challenges that may arise when faced with the responsibility of maximizing participants' safety while maintaining the boundaries of the researcher role. Guided by community psychology values, our team has taken measures within our role as researchers to empower and protect children and mothers endorsing suicidal ideation. For example, we have relied on relationships with community-based organizations and AIDS service organizations to connect HIV-affected families to mental health services. Furthermore, we have expanded our system of documentation to follow-up adequately with families at risk, and we track family resources to promote a strengths-based framework. We have solicited families' feedback about their supports and needs to understand how we may best serve them by connecting them to the resources they report needing most and empowering them to care for themselves.

摘要

TRACK-II 项目是一个多地点、基于社区的随机对照试验,旨在评估一项干预措施,以帮助感染艾滋病毒的母亲(MLH)向其幼儿透露其艾滋病毒状况。许多参与者——包括母亲和儿童——报告了严重的抑郁和/或自杀意念,这一现象带来了伦理挑战。本文聚焦于一个地点(亚特兰大)的参与者。通过“乔丹”的案例,我们描述了当面对既要最大限度地保障参与者的安全,又要维护研究人员角色边界的责任时,可能出现的伦理挑战。在社区心理学价值观的指导下,我们的团队作为研究人员,采取了一些措施,赋予和保护那些表达自杀意念的儿童和母亲权力。例如,我们依赖于社区组织和艾滋病服务组织的关系,将受艾滋病毒影响的家庭与心理健康服务联系起来。此外,我们扩大了我们的文件系统,以便充分跟踪有风险的家庭,并跟踪家庭资源,以促进基于优势的框架。我们征求了家庭对其支持和需求的反馈意见,以了解如何通过将他们与他们最需要的资源联系起来,并赋予他们照顾自己的权力,来最好地为他们服务。

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引用本文的文献

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Implementing a multisite efficacy trial to facilitate maternal disclosure to children: the TRACK HIV Disclosure Intervention.实施一项多地点疗效试验以促进母亲向儿童披露 HIV 感染状况:TRACK HIV 披露干预措施。
Transl Behav Med. 2022 May 26;12(5):630-641. doi: 10.1093/tbm/ibab167.
2
Longitudinal Bidirectional Relations among Parenting Quality, Parenting Stress, and Child Functioning in HIV-affected Families.HIV 感染者家庭中教养质量、教养压力与儿童功能的纵向双向关系。
J Youth Adolesc. 2021 Aug;50(8):1663-1678. doi: 10.1007/s10964-021-01444-w. Epub 2021 May 12.

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