Doley Joanna Rachel, Hart Laura Merilyn, Stukas Arthur Anthony, Morgan Amy Joanna, Rowlands Danielle Lisa, Paxton Susan Jessica
La Trobe University, Melbourne Campus, Melbourne, Australia.
The Butterfly Foundation, Glen Iris, Australia.
J Eat Disord. 2017 Nov 21;5:54. doi: 10.1186/s40337-017-0183-x. eCollection 2017.
Concerns exist around how to talk about eating disorders (EDs) due to evidence that suggests discussing ED symptoms and behaviours may cause or worsen symptoms in vulnerable people. Using expert consensus, we developed a set of guidelines for giving safe community presentations about EDs.
Participants with professional ED expertise, and people with lived experience of an ED, were recruited for a Delphi study. = 26 panel members rated 367 statements for both a) inclusion in guidelines, and b) their potential to be helpful (increase knowledge, reduce stigma) or harmful (increase stigma, cause/worsen ED symptoms). After each round of the study, statements were classified as endorsed, re-rate, or not endorsed.
208 statements were endorsed by the panel over three rounds. 13 statements were strongly endorsed in the first round, with both people with lived experience and professionals agreeing it is important for presentations to include information on etiology of EDs and to promote help-seeking. Several statements had a high level of disagreement between those with lived experience and professionals, including the idea that presentations should suggest dieting is likely to result in weight gain.
The experts were able to develop consensus on a wide range of issues. Panel members, particularly people with lived experience, were sensitive to aspects of presentations that may be harmful to an audience. The guidelines fill an important gap in the literature and provide guidance to those educating the public about EDs; they should, however, be further evaluated to test their efficacy.
由于有证据表明，讨论饮食失调（ED）症状和行为可能会导致或加重易感人群的症状，因此对于如何谈论饮食失调存在担忧。我们通过专家共识，制定了一套关于在社区安全介绍饮食失调的指南。
招募了具有饮食失调专业知识的参与者以及有饮食失调亲身经历的人，进行德尔菲研究。26名小组成员对367条陈述进行了评分，分别针对a）是否纳入指南，以及b）它们可能有帮助（增加知识、减少污名）或有害（增加污名、导致/加重饮食失调症状）的可能性。在研究的每一轮之后，陈述被分类为认可、重新评分或不认可。
在三轮研究中，小组认可了208条陈述。13条陈述在第一轮中得到了强烈认可，有亲身经历的人和专业人员都认为，介绍中包含饮食失调病因的信息并促进寻求帮助很重要。有几条陈述在有亲身经历的人和专业人员之间存在高度分歧，包括认为介绍应该表明节食可能会导致体重增加的观点。
专家们能够就广泛的问题达成共识。小组成员，特别是有亲身经历的人，对介绍中可能对听众有害的方面很敏感。这些指南填补了文献中的一个重要空白，并为那些向公众宣传饮食失调的人提供了指导；然而，它们应该进一步评估以测试其效果。
