The Cancer Clinical Trials Unit, Clinical Research Facility, National University of Ireland Galway, Galway University Hospital, Galway, Ireland.
School of Nursing and Midwifery, National University of Ireland, Galway, Ireland.
J Clin Nurs. 2018 Apr;27(7-8):1713-1721. doi: 10.1111/jocn.14232. Epub 2018 Mar 15.
To explore which symptoms relapsed myeloma patients experience and what self-care strategies are used.
This was a qualitative study utilising focus group interviews (n = 4) with relapsed myeloma patients (n = 15) and carers (n = 9). The focus groups were analysed and guided by thematic analysis.
Three major themes with subthemes were identified following analysis of the interview data: "difficult symptoms; "self-care" and "feeling vulnerable." These findings indicate the challenges relapsed myeloma patients experience with ongoing symptoms and highlight the importance of continuity of care.
Symptom management for myeloma patients remains complex due to the array of treatments given. These patients require holistic care and thorough regular assessments to help them cope with the adverse effects on their physical and psychological health. For patients with a long-term diagnosis of myeloma, self-management workshops and regular education sessions may be of benefit.
This study highlights the key role of healthcare professionals in going beyond assessment of symptoms to offering advice and support to assist relapsed myeloma patients in managing their symptoms.
探讨复发性骨髓瘤患者经历的哪些症状以及使用了哪些自我护理策略。
这是一项定性研究，采用焦点小组访谈（n=4）的方法，对复发性骨髓瘤患者（n=15）和护理人员（n=9）进行了访谈。采用主题分析对焦点小组进行了分析和指导。
对访谈数据进行分析后，确定了三个主要主题和子主题：“困难症状”、“自我护理”和“感到脆弱”。这些发现表明，复发性骨髓瘤患者持续存在症状时面临的挑战，并强调了连续性护理的重要性。
由于给予了多种治疗方法，骨髓瘤患者的症状管理仍然很复杂。这些患者需要全面的护理和定期的全面评估，以帮助他们应对对身心健康的不利影响。对于长期诊断为骨髓瘤的患者，自我管理研讨会和定期教育课程可能会有所帮助。
本研究强调了医护人员的关键作用，他们不仅要评估症状，还要提供建议和支持，帮助复发性骨髓瘤患者管理其症状。
