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From "Longshot" to "Fantasy": Obligations to Pediatric Patients and Families When Last-Ditch Medical Efforts Fail.从“孤注一掷”到“幻想”：当最后一搏的医疗努力失败时，对儿科患者及其家庭的义务。
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What Nurse Bioethicists Bring to Bioethics: .护士生物伦理学家为生物伦理学带来了什么：
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A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness.医疗专业人员与重病患者沟通的研究议程。
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J Palliat Med. 2016 Jun;19(6):626-31. doi: 10.1089/jpm.2015.0472. Epub 2016 Apr 26.
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Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling.儿科肿瘤学中的沟通技巧培训：超越榜样示范
Pediatr Blood Cancer. 2016 Jun;63(6):966-72. doi: 10.1002/pbc.25918. Epub 2016 Jan 29.
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Communicating about prognosis: ethical responsibilities of pediatricians and parents.沟通预后：儿科医生和家长的伦理责任。
Pediatrics. 2014 Feb;133 Suppl 1:S24-30. doi: 10.1542/peds.2013-3608E.
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Communication with parents concerning withholding or withdrawing of life-sustaining interventions in neonatology.在新生儿学领域，就停止或撤除维持生命的干预措施与家长进行沟通。
Semin Perinatol. 2014 Feb;38(1):38-46. doi: 10.1053/j.semperi.2013.07.007.
8
Reasons why physicians do not have discussions about poor prognosis, why it matters, and what can be improved.医生不讨论预后不良情况的原因、其重要性以及可改进之处。
J Clin Oncol. 2012 Aug 1;30(22):2715-7. doi: 10.1200/JCO.2012.42.4564. Epub 2012 Jul 2.
9
"Trying to be a good parent" as defined by interviews with parents who made phase I, terminal care, and resuscitation decisions for their children.通过对那些为子女做出第一阶段、临终护理和复苏决定的父母进行访谈所定义的“努力成为好父母”。
J Clin Oncol. 2009 Dec 10;27(35):5979-85. doi: 10.1200/JCO.2008.20.0204. Epub 2009 Oct 5.
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Collaborative communication in pediatric palliative care: a foundation for problem-solving and decision-making.儿科姑息治疗中的协作沟通：解决问题和决策的基础。
Pediatr Clin North Am. 2007 Oct;54(5):583-607, ix. doi: 10.1016/j.pcl.2007.07.008.

Communicating With Pediatric Families at End-of-Life Is Not a Fantasy.

作者信息

Ulrich Connie M, Mooney-Doyle Kim, Grady Christine

机构信息

a University of Pennsylvania.

b University of Maryland.

出版信息

Am J Bioeth. 2018 Jan;18(1):14-16. doi: 10.1080/15265161.2017.1401175.

DOI:10.1080/15265161.2017.1401175
PMID:29313774
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6010311/
Abstract
摘要