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本文引用的文献

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Managing CKD by Telemedicine: The Zuni Telenephrology Clinic.通过远程医疗管理慢性肾脏病:祖尼远程肾脏病诊所
Adv Chronic Kidney Dis. 2017 Jan;24(1):6-11. doi: 10.1053/j.ackd.2016.11.019.
2
Telehealth Applications to Enhance CKD Knowledge and Awareness Among Patients and Providers.远程医疗应用以提高患者和医疗服务提供者对慢性肾脏病的认识和了解。
Adv Chronic Kidney Dis. 2017 Jan;24(1):39-45. doi: 10.1053/j.ackd.2016.11.017.
3
Telemedicine to Promote Patient Safety: Use of Phone-Based Interactive Voice-Response System to Reduce Adverse Safety Events in Pre-dialysis CKD.远程医疗促进患者安全:使用基于电话的交互式语音应答系统减少透析前慢性肾脏病患者的不良安全事件
Adv Chronic Kidney Dis. 2017 Jan;24(1):31-38. doi: 10.1053/j.ackd.2016.12.004.
4
Targeting Access to Kidney Care Via Telehealth: The VA Experience.通过远程医疗实现肾脏护理可及性:退伍军人事务部的经验
Adv Chronic Kidney Dis. 2017 Jan;24(1):22-30. doi: 10.1053/j.ackd.2016.11.005.
5
Nephrology and Telehealth: Now? or Now!肾脏病学与远程医疗:现在?还是现在!
Adv Chronic Kidney Dis. 2017 Jan;24(1):1-3. doi: 10.1053/j.ackd.2016.12.006.
6
Home Dialysis Utilization Among Racial and Ethnic Minorities in the United States at the National, Regional, and State Level.美国国家、地区和州层面少数族裔家庭透析的使用情况
Perit Dial Int. 2017;37(1):21-29. doi: 10.3747/pdi.2016.00025. Epub 2016 Sep 28.
7
A Randomized Controlled Trial of a Mobile Clinical Decision Aid to Improve Access to Kidney Transplantation: iChoose Kidney.一项关于移动临床决策辅助工具以改善肾移植可及性的随机对照试验:iChoose Kidney
Kidney Int Rep. 2016 May;1(1):34-42. doi: 10.1016/j.ekir.2016.04.001. Epub 2016 Apr 20.
8
Patient Perspectives on the Choice of Dialysis Modality: Results From the Empowering Patients on Choices for Renal Replacement Therapy (EPOCH-RRT) Study.患者对透析方式选择的观点:来自增强肾脏替代治疗选择患者赋权研究(EPOCH-RRT)的结果。
Am J Kidney Dis. 2016 Dec;68(6):901-910. doi: 10.1053/j.ajkd.2016.05.010. Epub 2016 Jun 21.
9
Patient Education and Support During CKD Transitions: When the Possible Becomes Probable.慢性肾脏病(CKD)病情转变期间的患者教育与支持:从可能变为很可能之时。
Adv Chronic Kidney Dis. 2016 Jul;23(4):231-9. doi: 10.1053/j.ackd.2016.04.004.
10
Patient-Reported Safety Events in Chronic Kidney Disease Recorded With an Interactive Voice-Inquiry Dial-Response System: Monthly Report Analysis.使用交互式语音询问拨号响应系统记录的慢性肾脏病患者报告的安全事件:月度报告分析
J Med Internet Res. 2016 May 26;18(5):e125. doi: 10.2196/jmir.5203.

远程医疗在肾脏替代治疗教育中的作用。

Role of telehealth in renal replacement therapy education.

作者信息

Malkina Anna, Tuot Delphine S

机构信息

Division of Nephrology, University of California, San Francisco, CA, USA.

Division of Nephrology, Zuckerberg San Francisco General Hospital, University of California, San Francisco, CA, USA.

出版信息

Semin Dial. 2018 Mar;31(2):129-134. doi: 10.1111/sdi.12663. Epub 2018 Jan 3.

DOI:10.1111/sdi.12663
PMID:29314304
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5839979/
Abstract

The prevalence of end-stage renal disease is rising in the United States, which bears high financial and public health burden. The most common modality of renal replacement therapy (RRT) in the United States is in-center hemodialysis. Many patients report lack of comprehensive and timely education about their treatment options, which may preclude them from participating in home-based dialysis therapies and kidney transplantation evaluation. While RRT education has traditionally been provided in-person, the rise of telehealth has afforded new opportunities to improve upon the status quo. For example, technology-augmented RRT education has recently been implemented into telehealth nephrology clinics, informational websites and mobile applications maintained by professional organizations, patient-driven forums on social media, and multimodality programs. The benefits of technology in RRT education are increased access for geographically isolated and/or medically frail patients, versatility of content delivery, information repetition to enhance knowledge retention, and interpersonal connection for educational content and emotional support. Challenges center around privacy and accuracy of information sharing, in addition to differential access to technology due to age and socioeconomic status. A review of available scholarly and social media resources suggests that technology-aided delivery of education about treatment options for end-stage renal disease provides an important alternative and/or supplemental resource for patients and families.

摘要

在美国,终末期肾病的患病率正在上升,这带来了高昂的经济和公共卫生负担。在美国,肾脏替代治疗(RRT)最常见的方式是中心血液透析。许多患者表示,他们缺乏关于治疗选择的全面且及时的教育,这可能使他们无法参与家庭透析治疗和肾脏移植评估。虽然传统上RRT教育是面对面提供的,但远程医疗的兴起为改善现状提供了新机会。例如,技术增强型RRT教育最近已应用于远程医疗肾脏病诊所、专业组织维护的信息网站和移动应用程序、社交媒体上患者驱动的论坛以及多模式项目。技术在RRT教育中的好处包括增加了地理上孤立和/或身体虚弱患者的可及性、内容传递的多样性、信息重复以增强知识保留,以及教育内容和情感支持的人际联系。挑战主要围绕信息共享的隐私和准确性,以及由于年龄和社会经济地位导致的技术获取差异。对现有学术和社交媒体资源的回顾表明,技术辅助的终末期肾病治疗选择教育为患者和家庭提供了重要的替代和/或补充资源。