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本文引用的文献

1
Exploring Barriers of the Health System to Rehabilitation Services for People with Disabilities in Iran: A Qualitative Study.探索伊朗卫生系统对残疾人康复服务的障碍:一项定性研究
Electron Physician. 2015 Nov 20;7(7):1476-85. doi: 10.19082/1476. eCollection 2015 Nov.
2
Self-reported stigma and its association with socio-demographic factors and physical disability in people with intellectual disabilities: results from a cross-sectional study in England.智力障碍者的自我报告耻辱感及其与社会人口学因素和身体残疾的关联:英格兰一项横断面研究的结果
Soc Psychiatry Psychiatr Epidemiol. 2016 Mar;51(3):465-74. doi: 10.1007/s00127-015-1133-z. Epub 2015 Oct 24.
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Rehabilitation Needs of People with Cerebral Palsy: a qualitative Study.脑瘫患者的康复需求:一项定性研究
Med J Islam Repub Iran. 2014 Feb 26;28:16. eCollection 2014.
4
Barriers to cancer screening for people with disabilities: a literature review.残疾人癌症筛查的障碍:文献综述
Disabil Health J. 2015 Jan;8(1):9-16. doi: 10.1016/j.dhjo.2014.06.004. Epub 2014 Jul 1.
5
Determinants of catastrophic health expenditure in iran.伊朗灾难性医疗支出的决定因素。
Iran J Public Health. 2013 Jan 1;42(Supple1):155-60. Print 2013.
6
Improving responsiveness of health systems to non-communicable diseases.提高卫生系统对非传染性疾病的应对能力。
Lancet. 2013 Feb 23;381(9867):690-7. doi: 10.1016/S0140-6736(13)60063-X. Epub 2013 Feb 12.
7
Depression in mothers of children with cerebral palsy and its relation to severity and type of cerebral palsy.脑瘫患儿母亲的抑郁状况及其与脑瘫严重程度和类型的关系。
Acta Med Iran. 2010 Jul-Aug;48(4):250-4.
8
Sharing qualitative research findings with participants: study experiences of methodological and ethical dilemmas.与参与者分享定性研究结果:方法学和伦理困境的研究经验。
Patient Educ Couns. 2011 Mar;82(3):389-95. doi: 10.1016/j.pec.2010.12.016. Epub 2011 Jan 22.
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The "Big 5" and beyond: nurses, paid carers, and adults with developmental disability discuss communication needs in hospital.“五大”之外:护士、付费护工和发育障碍成年人讨论医院中的沟通需求。
Appl Nurs Res. 2011 Nov;24(4):e51-8. doi: 10.1016/j.apnr.2010.09.001. Epub 2010 Oct 27.
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The intersection of culture, disability and assistive technology.文化、残疾与辅助技术的交叉点。
Disabil Rehabil Assist Technol. 2011;6(2):87-96. doi: 10.3109/17483107.2010.507859. Epub 2010 Aug 10.

伊朗残疾人获得医疗保健服务的文化障碍:一项定性研究。

Cultural barriers in access to healthcare services for people with disability in Iran: A qualitative study.

作者信息

Soltani Shahin, Takian Amirhossein, Akbari Sari Ali, Majdzadeh Reza, Kamali Mohammad

机构信息

Department of Health Management and Economics, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran.

Department of Global Health and Public Policy, School of Public Health, Tehran University of Medical Sciences, Tehran, Iran.

出版信息

Med J Islam Repub Iran. 2017 Sep 3;31:51. doi: 10.14196/mjiri.31.51. eCollection 2017.

DOI:10.14196/mjiri.31.51
PMID:29445680
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5804431/
Abstract

People with disability experience various problems to access to healthcare services. This study aimed to identify cultural barriers in access to healthcare services for people with disability in Iran. We conducted a qualitative study using content analysis to identify the cultural barriers. We used semi-structured interviews to collect data. Participants were selected through purposeful sampling with maximum variation. 50 individual interviews were conducted with three groups of people with disability, healthcare services providers and policy makers, September to May 2015, at different locations in Tehran, Iran. We identified a number of different cultural barriers in access to health services for people with disability in Iran. These related to health service providers, namely reluctance to provide health services and disrespect; related to People with disability, namely denial of disability, disproportionate expectation, shame and insufficient sociocultural supports; and related to policy makers, namely lack of concern, little attention to the culture of disability and discrimination. We categorized misconception as a barrier that was observed at all levels of the society. Disability is a reality that some human being may experience and live with it. The negative attitude towards people with disability has a close relationship with the cultural norms of a society. The culture of disability in different dimensions should be a priority for all policy makers. Removing cultural barriers in access to healthcare for people with a disability needs collective efforts and collaborations among all stakeholders.

摘要

残疾人在获得医疗服务方面面临各种问题。本研究旨在确定伊朗残疾人在获得医疗服务方面的文化障碍。我们采用内容分析法进行了一项定性研究,以确定文化障碍。我们使用半结构化访谈来收集数据。通过最大差异的目的抽样选择参与者。2015年9月至5月,在伊朗德黑兰的不同地点,对三组人群进行了50次个人访谈,这三组人群分别是残疾人、医疗服务提供者和政策制定者。我们确定了伊朗残疾人在获得医疗服务方面的一些不同文化障碍。这些障碍与医疗服务提供者有关,即不愿提供医疗服务和不尊重;与残疾人有关,即否认残疾、过高期望、羞耻感和社会文化支持不足;与政策制定者有关,即缺乏关注、对残疾文化关注甚少和歧视。我们将误解归类为在社会各层面都存在的一种障碍。残疾是一些人可能经历并与之共存的现实。对残疾人的消极态度与一个社会的文化规范密切相关。不同层面的残疾文化应成为所有政策制定者的优先事项。消除残疾人在获得医疗保健方面的文化障碍需要所有利益相关者共同努力与合作。