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本文引用的文献

1
Self-Management Strategies in Emerging Adults With Type 1 Diabetes.1型糖尿病青少年成人的自我管理策略
J Pediatr Health Care. 2017 Jan-Feb;31(1):29-36. doi: 10.1016/j.pedhc.2016.01.003. Epub 2016 Feb 6.
2
Relationship Between Adolescent Report of Patient-Centered Care and of Quality of Primary Care.青少年对以患者为中心的护理及初级护理质量的报告之间的关系
Acad Pediatr. 2016 Nov-Dec;16(8):770-776. doi: 10.1016/j.acap.2016.01.006. Epub 2016 Jan 20.
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Topical Review: Advancing Research on the Transition to Adult Care for Type 1 Diabetes.专题综述:推进1型糖尿病成人护理过渡研究
J Pediatr Psychol. 2015 Nov-Dec;40(10):1041-7. doi: 10.1093/jpepsy/jsv064. Epub 2015 Jul 2.
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Type 1 diabetes in young adulthood.青年期1型糖尿病
Curr Diabetes Rev. 2015;11(4):239-50. doi: 10.2174/1573399811666150421114957.
5
The experiences and impact of transition from child to adult healthcare services for young people with Type 1 diabetes: a systematic review.1型糖尿病青少年从儿童期到成人期医疗服务过渡的经历与影响:一项系统综述
Diabet Med. 2015 Apr;32(4):440-58. doi: 10.1111/dme.12639. Epub 2015 Jan 12.
6
Transition readiness in pediatric patients with inflammatory bowel disease: patient survey of self-management skills.炎症性肠病患儿的过渡准备情况:自我管理技能的患者调查
J Pediatr Gastroenterol Nutr. 2015 Jan;60(1):36-41. doi: 10.1097/MPG.0000000000000555.
7
Clinical conversations about health: the impact of confidentiality in preventive adolescent care.关于健康的临床对话:预防青少年保健中保密性的影响。
J Adolesc Health. 2014 Nov;55(5):672-7. doi: 10.1016/j.jadohealth.2014.05.016. Epub 2014 Jul 16.
8
Patient-provider relationships across the transition from pediatric to adult diabetes care: a qualitative study.从儿科到成人糖尿病护理过渡期间的医患关系:一项定性研究。
Diabetes Educ. 2014 Jan-Feb;40(1):40-7. doi: 10.1177/0145721713513177. Epub 2013 Nov 20.
9
Perspectives from before and after the pediatric to adult care transition: a mixed-methods study in type 1 diabetes.儿科到成人照护过渡前后的观点:1 型糖尿病的混合方法研究。
Diabetes Care. 2014 Feb;37(2):346-54. doi: 10.2337/dc13-1346. Epub 2013 Oct 2.
10
Transition readiness in adolescents and emerging adults with diabetes: the role of patient-provider communication.青少年和青年糖尿病患者的过渡准备:医患沟通的作用。
Curr Diab Rep. 2013 Dec;13(6):900-8. doi: 10.1007/s11892-013-0420-x.

1型糖尿病青少年成人的健康传播经历

Health Communication Experiences of Emerging Adults with Type 1 Diabetes.

作者信息

Simms MaryJane, Baumann Katherine, Monaghan Maureen

机构信息

Children's National Health System, Washington, DC.

George Washington University School of Medicine, Washington, DC.

出版信息

Clin Pract Pediatr Psychol. 2017 Dec;5(4):415-425. doi: 10.1037/cpp0000211.

DOI:10.1037/cpp0000211
PMID:29456906
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5810591/
Abstract

OBJECTIVE

In an effort to refine a model of clinical care identifying effective communication with health care providers (HCPs) as a key skill for successful transition to adult medical care, this study explored the perspectives of emerging adults with type 1 diabetes (T1D) about factors that impact the quality and content of communication with their HCPs.

METHODS

Twenty emerging adults with T1D were interviewed about health communication experiences with their pediatric HCP and readiness for transition to adult diabetes care. Interviews were recorded and transcribed; three raters coded transcripts using conventional content analysis for broad themes.

RESULTS

Five themes emerged from the data capturing factors that influence emerging adult-HCP communication: HCP interaction style, HCP consistency, HCP support for autonomy, parental involvement in medical care, and emerging adult comfort with disclosure. Most emerging adults had not discussed transition to adult diabetes care with their HCP; some expressed confidence in their ability to transition while others expressed anxiety about the transition process.

CONCLUSIONS

Findings support the conceptual model of communication and inform clinical implications for working with emerging adults with T1D. Continuity of care should be prioritized with transition-age patients. Additionally, HCPs should initiate conversations about engagement in risky behaviors and transition to adult medical care and ensure emerging adults have time without parents to discuss these sensitive topics. Psychologists can enhance the transition process by facilitating effective patient-HCP communication and coaching both patients and HCPs to ask questions about risky behaviors and transition to adult medical care.

摘要

目的

为完善临床护理模式,该模式将与医疗服务提供者(HCPs)进行有效沟通视为成功过渡到成人医疗护理的关键技能,本研究探讨了1型糖尿病(T1D)青少年对影响其与HCPs沟通质量和内容的因素的看法。

方法

对20名患有T1D的青少年进行了访谈,了解他们与儿科HCP的健康沟通经历以及向成人糖尿病护理过渡的准备情况。访谈进行了录音和转录;三名评分者使用传统内容分析法对转录本进行编码,以确定广泛的主题。

结果

数据中出现了五个主题,涵盖影响青少年与HCP沟通的因素:HCP的互动风格、HCP的一致性、HCP对自主性的支持、父母对医疗护理的参与以及青少年对披露信息的舒适度。大多数青少年尚未与他们的HCP讨论过向成人糖尿病护理的过渡;一些人对自己过渡的能力表示有信心,而另一些人则对过渡过程表示焦虑。

结论

研究结果支持沟通的概念模型,并为与患有T1D的青少年合作提供了临床启示。对于处于过渡年龄的患者,应优先考虑护理的连续性。此外,HCPs应主动开展关于危险行为参与和向成人医疗护理过渡的对话,并确保青少年有时间在没有父母在场的情况下讨论这些敏感话题。心理学家可以通过促进有效的患者与HCP沟通,并指导患者和HCP就危险行为和向成人医疗护理过渡提出问题,来加强过渡过程。