Division of Epilepsy, Beth Israel Deaconess Medical Center, Boston, MA, USA.
Clinical Epilepsy Section, National Institute of Neurological Disorders and Stroke, National Institutes of Health, Bethesda, MD, USA.
Epilepsia. 2018 May;59(5):1020-1026. doi: 10.1111/epi.14066. Epub 2018 Mar 31.
Common data elements (CDEs) are currently unavailable for mobile health (mHealth) in epilepsy devices and related applications. As a result, despite expansive growth of new digital services for people with epilepsy, information collected is often not interoperable or directly comparable. We aim to correct this problem through development of industry-wide standards for mHealth epilepsy data.
Using a group of stakeholders from industry, academia, and patient advocacy organizations, we offer a consensus statement for the elements that may facilitate communication among different systems.
A consensus statement is presented for epilepsy mHealth CDEs.
Although it is not exclusive, we believe that the use of a minimal common information denominator, specifically these CDEs, will promote innovation, accelerate scientific discovery, and enhance clinical usage across applications and devices in the epilepsy mHealth space. As a consequence, people with epilepsy will have greater flexibility and ultimately more powerful tools to improve their lives.
移动医疗（mHealth）在癫痫设备和相关应用中缺乏通用数据元素（CDEs）。因此，尽管针对癫痫患者的新数字服务广泛增长，但所收集的信息通常不可互操作或无法直接比较。我们旨在通过为 mHealth 癫痫数据制定行业标准来纠正这个问题。
我们使用来自行业、学术界和患者倡导组织的一组利益相关者，为可能促进不同系统之间通信的元素提供了共识声明。
提出了癫痫 mHealth CDE 的共识声明。
尽管不是排他性的，但我们相信使用最小的通用信息基准，特别是这些 CDEs，将促进创新，加速科学发现，并增强癫痫 mHealth 领域的应用程序和设备中的临床使用。因此，癫痫患者将拥有更大的灵活性，并最终拥有更强大的工具来改善他们的生活。
